Electronic Follow-Up of Developing World Cleft Patients: A Digital Dream?

Electronic Follow-Up of Developing World Cleft Patients: A Digital Dream?
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发展中国家唇腭裂患者的电子随访:数字梦想?

DOI:
10.1089/tmj.2017.0012
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发表时间:
2017
期刊:
Telemedicine journal and e-health : the official journal of the American Telemedicine Association
影响因子:
--
通讯作者:
P. Ayliffe
P. Ayliffe
中科院分区:
--
文献类型:
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作者:
T. Walker;A. Chadha;W. Rodgers;C. Mills;P. Ayliffe

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目的 确定在人道主义使命中对唇腭裂儿童进行远程医疗随访的可能途径。 方法 对菲律宾一家省级医院唇腭裂使命人道主义儿童家长的横断面研究。一个专门设计的问卷被用来评估访问电子和数字资源,可以用来帮助后续行动。45名(N = 45)患有原发性唇腭裂手术的儿童的父母参加了研究。没有人发言。访问互联网是通过父母感知的互联网接入和父母拥有的设备的负担能力。 结果 31名(N = 31)受访者为女性。移动的手机拥有率为93%。前往诊所的平均距离为187公里。大多数人(56%)英语流利。31%的人每天上网。16%的人报告使用电子邮件。51%的人通过移动终端访问互联网,使用短信服务是最实惠的通信方式。 结论 由于人们普遍认为无法负担费用,使用带有摄像头和互联网的设备的水平较低,以及隐私问题,我们不建议在发展中国家依赖电子随访。
OBJECTIVE To identify potential access to telemedicine follow-up of children with clefts operated on a humanitarian mission. METHODS A cross-sectional study of parents of children presenting to a humanitarian cleft lip and palate mission in a Provincial Hospital in the Philippines. A purpose designed questionnaire was used to assess access to electronic and digital resources that could be used to aid follow-up. Forty-five (N = 45) parents of children having primary cleft lip and or palate surgery participated. There were no interventions. Access to the Internet was through Parent Perceived Affordability of Internet Access and Parent Owned Devices. RESULTS Thirty-one (N = 31) respondents were female. There was 93% mobile phone ownership. The mean distance traveled to the clinic was 187 km. Majority (56%) were fluent in English. Thirty-one percent accessed the Internet daily. Sixteen percent reported use of e-mail. Fifty-one percent accessed the Internet on a mobile device, and short message service use was the most affordable means of communication. CONCLUSIONS Due to perceived unaffordability and low levels of access to devices with cameras and the Internet, as well as issues with privacy, we cannot recommend relying on electronic follow-up of patients in the developing world.