Anticipated stigma and quality of life among people living with chronic illnesses.

Anticipated stigma and quality of life among people living with chronic illnesses.
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DOI:
10.1177/1742395311429393
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发表时间:
2012-06
期刊:
影响因子:
1.3
通讯作者:
Park CL
Park CL
中科院分区:
医学4区
文献类型:
--
作者:
Earnshaw VA;Quinn DM;Park CL

文献摘要

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我们研究了预期的污名与慢性病患者的生活质量有关的过程。我们假设压力、社会支持和患者满意度在预期污名的三个来源和生活质量之间起中介作用。数据来自从支持团体和在线社区招募的患有慢性病的成年人,并用通径分析进行分析。结果显示,压力在来自朋友和家人的预期污名和工作同事与生活质量之间的关系中起中介作用;社会支持在来自朋友和家人的预期污名和工作同事与生活质量之间的关系中起中介作用;患者满意度在来自医疗保健提供者的预期污名与生活质量之间的关系中起中介作用。最终的路径模型符合数据(χ2(8)=8.6 6,p=0.37;RMSEA=0.0 2;CFI=0.99;SRMR=0.0 3),可解释受试者生活质量变异的60%。这项工作突出了提高生活质量的潜在干预点。它提请注意在临床环境、干预措施和涉及慢性病患者的研究中区分预期污名来源的重要性。
We examined the process by which anticipated stigma relates to quality of life among people living with chronic illnesses. We hypothesized that stress, social support and patient satisfaction mediate the relationships between three sources of anticipated stigma and quality of life. Data were collected from adults living with chronic illnesses recruited from support groups and online communities, and were analysed with path analysis. Results demonstrated that stress mediated the relationships between anticipated stigma from friends and family, and work colleagues with quality of life; social support mediated the relationships between anticipated stigma from friends and family, and work colleagues with quality of life; and patient satisfaction mediated the relationship between anticipated stigma from healthcare providers with quality of life. The final path model fit the data well (χ2 (8)=8.66, p=0.37; RMSEA=0.02; CFI=0.99; SRMR=0.03), and accounted for 60% of the variance in participants’ quality of life. This work highlights potential points of intervention to improve quality of life. It calls attention to the importance of differentiating between sources of anticipated stigma in clinical settings, interventions and research involving people living with chronic illnesses.