Reducing Barriers to Patient-Reported Outcome Measures for People With Cognitive Impairments
Reducing Barriers to Patient-Reported Outcome Measures for People With Cognitive Impairments
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DOI：
10.1016/j.apmr.2017.03.011
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发表时间：
2017-08-01
影响因子：
4.3
通讯作者：
Schwartz, Ariel
中科院分区：
文献类型：
--
作者：
Kramer, Jessica M.;Schwartz, Ariel
康复领域越来越多地要求在研究和实践中使用患者报告的结果措施（PROMs）。鉴于许多康复患者存在与认知障碍相关的疾病，因此必须减少这一人群使用PROM的障碍。这篇文章的目的是发展一个全面的认知可访问性的理解，可以前瞻性地通知设计的PROM。我们提出了以下定义的认知可及性的PROMs：认知可及性是存在的，当评估设计预期的受访者的认知能力的变化，并在最大程度上，减少认知需求和/或支持认知过程，使受访者的认知能力范围内的解释和响应的评估项目的预期。我们在康复领域的测量认知可及性的操作是由2个假设：（1）认知可及性的结果之间的相互作用的个人的能力和评估和评估环境的需求，（2）个人与认知障碍有权利参与决定他们的生活，包括医疗保健的决定。本文提出了3个可以优化认知可访问性的设计特征：内容，布局和管理程序。最后，我们讨论了康复测量领域可以采取的下一步措施，以促进我们对认知可及性的理解。(C)2017年美国康复医学大会
The field of rehabilitation has increasingly called for the use of patient-reported outcome measures (PROMs) in research and practice. Given that many rehabilitation patients present with conditions associated with cognitive impairments, it is imperative to reduce barriers to PROM use for this population. The purpose of this article is to develop a comprehensive understanding of cognitive accessibility that can prospectively inform the design of PROMs. We put forth the following definition of cognitive accessibility for PROMs: cognitive accessibility is present when assessment design anticipates respondent variability in cognitive abilities and, to the greatest extent possible, reduces cognitive demands and/or supports cognitive processes to enable respondents with a range of cognitive abilities to interpret and respond to assessment items as intended. Our operationalization of cognitive accessibility in measurement in the field of rehabilitation is informed by 2 assumptions: (1) cognitive accessibility results from an interaction between the individual's capacities and the demands of the assessment and assessment context, and (2) individuals with cognitive impairments have the right to be involved in decisions about their lives, including health care decisions. This article proposes 3 design features that can be optimized for cognitive accessibility: content, layout, and administration procedures. We end with a discussion of next steps that the field of rehabilitation measurement can undertake to advance our understanding of cognitive accessibility. (C) 2017 by the American Congress of Rehabilitation Medicine