The process of HIV status disclosure to HIV-positive youth in Kinshasa, Democratic Republic of the Congo

The process of HIV status disclosure to HIV-positive youth in Kinshasa, Democratic Republic of the Congo
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DOI:
10.1080/09540120701742276
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发表时间:
2008-01-01
影响因子:
1.7
通讯作者:
Behets, F.
Behets, F.
中科院分区:
医学4区
文献类型:
--
作者:
Vaz, L.;Corneli, A.;Behets, F.

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随着撒哈拉以南非洲获得艾滋病毒/艾滋病治疗的机会增加,感染艾滋病毒的青年受到更多关注。关于艾滋病毒阳性青年如何被告知其艾滋病毒感染情况,人们知之甚少。作为一个更大的形成性研究的一部分,为刚果金沙萨的一个治疗方案提供信息,对19名先前被告知其艾滋病毒状况的青年(10-21岁)和21名向青年透露其艾滋病毒状况的照顾者进行了半结构化访谈。这些问题探讨了青年和照顾者对披露的经历和立即反应。青少年的中位年龄为15岁,根据照顾者报告(n = 21),范围为10 - 18岁,根据青少年报告(n = 18),范围为10-19岁。最常见的自发披露原因是孩子坚持他们的治疗方案(5/16),孩子需要保护她/他自己或保持健康(5/16),孩子的年龄增长(4/16),这样孩子就知道他们为什么受苦(3/16)。大多数年轻人(16/19)对他们的诊断感到惊讶; 50%(8/16)想知道感染的起源。绝大多数人认为,最好让她们知道自己的艾滋病毒状况(88%;15/17)。必须制定艾滋病毒护理和治疗方案,以满足青少年及其护理人员在披露过程中的心理需求。
As access to HIV/AIDS treatment increases in sub-Saharan Africa, greater attention is being paid to HIV-infected youth. Little is known about how HIV-positive youth are informed of their HIV infection. As part of a larger formative study informing a treatment program in Kinshasa, Democratic Republic of the Congo, semi-structured interviews were conducted with 19 youth (10-21 years) who had previously been told their HIV status and 21 caregivers who had disclosed the youth's HIV status to the youth. Questions explored youth's and caregivers' experiences of and immediate reactions to disclosure. Youth's median age at disclosure was 15 years old, witha range of 10 - 18 years based on caregiver reports (n = 21) and from 10-19 years based on youth reports (n = 18). The most common reasons spontaneously given for disclosing were the child's adherence to their treatment regimen (5/16), the need of the child to protect her/himself or stay healthy (5/16), the child's increasing age (4/16) and so that the child would know why they are suffering (3/16). Most youth (16/19) were surprised to learn of their diagnosis; 50% (8/16) wondered about the infection's origins. A large majority felt that it is better for them to know their HIV status (88%;15/17). HIV care and treatment programs must be prepared to address the psychosocial needs of youth and their caregivers during the disclosure process.