The Privacy and Security Implications of Open Data in Healthcare.
The Privacy and Security Implications of Open Data in Healthcare.
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DOI：
10.1055/s-0038-1641201
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发表时间：
2018-08
影响因子：
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通讯作者：
Paton C
中科院分区：
文献类型：
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作者：
Kobayashi S;Kane TB;Paton C
目的：国际医学信息学协会（IMIA）开源工作组（OSWG）发起了一次小组讨论，从OSWG成员的角度讨论医疗保健领域开放数据运动中的当前隐私和安全问题。 方法：工作组成员独立审查了最近的学术和灰色文献，并抽样了一些当前的大型开放数据项目，以告知工作组的讨论。 结果：本文概述了开放数据存储库和一系列简短的案例报告，以强调最近文献中关于采用开放方法共享医疗数据集的相关问题。 出现的重要主题包括数据标准化，开源和开放数据运动的相互关联性，以及发布开放数据如何影响信息学项目的道德，安全和隐私。 结论：医疗保健领域的开放数据和开源运动有许多共同的理念和方法，包括在多个组织和专业领域开展国际合作。 这两项运动都旨在通过采用开放的知识产权许可协议和行为守则，降低推进科学研究和改善世界各地人民医疗保健服务的成本。在医疗保健中越来越多地采用开放数据的影响包括需要平衡开放数据源的安全和隐私挑战以及开放数据对改善研究和医疗保健提供的潜在好处。
Objective: The International Medical Informatics Association (IMIA) Open Source Working Group (OSWG) initiated a group discussion to discuss current privacy and security issues in the open data movement in the healthcare domain from the perspective of the OSWG membership. Methods: Working group members independently reviewed the recent academic and grey literature and sampled a number of current large-scale open data projects to inform the working group discussion. Results: This paper presents an overview of open data repositories and a series of short case reports to highlight relevant issues present in the recent literature concerning the adoption of open approaches to sharing healthcare datasets. Important themes that emerged included data standardisation, the inter-connected nature of the open source and open data movements, and how publishing open data can impact on the ethics, security, and privacy of informatics projects. Conclusions: The open data and open source movements in healthcare share many common philosophies and approaches including developing international collaborations across multiple organisations and domains of expertise. Both movements aim to reduce the costs of advancing scientific research and improving healthcare provision for people around the world by adopting open intellectual property licence agreements and codes of practice. Implications of the increased adoption of open data in healthcare include the need to balance the security and privacy challenges of opening data sources with the potential benefits of open data for improving research and healthcare delivery.