Developing the evidence base of patient and public involvement in health and social care research: the case for measuring impact

Developing the evidence base of patient and public involvement in health and social care research: the case for measuring impact
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DOI:
10.1111/j.1470-6431.2011.01020.x
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发表时间:
2011-11-01
影响因子:
9.9
通讯作者:
Williamson, Tracey
Williamson, Tracey
中科院分区:
管理学2区
文献类型:
--
作者:
Staniszewska, Sophie;Adebajo, Ade;Williamson, Tracey

文献摘要

被引文献

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虽然在过去的十年中,患者和公众参与(PPI)在健康和社会护理研究中取得了成功,但存在一系列证据基础方面的困难,包括对影响概念的理解不佳,理论化有限以及缺乏定量影响测量。在本文中,我们认为,一个范式的变化,对参与研究的影响进行强有力的测量是必要的,以补充定性探索。我们认为,服务用户应参与合作的概念化,理论化和工具的开发,以衡量PPI的影响。我们认为,通过更好地理解什么、对谁、在什么情况下以及为什么有效,关键优势测量将有助于加强PPI证据基础。
While patient and public involvement (PPI) in health and social care research has progressed successfully in the last decade, a range of difficulties with the evidence base exist, including poor understanding of the concept of impact, limited theorization and an absence of quantitative impact measurement. In this paper, we argue that a paradigm change towards robust measurement of the impact of involvement in research is needed to complement qualitative explorations. We argue that service users should be collaboratively involved in the conceptualization, theorization and development of instruments to measure PPI impact. We consider the key advantages measurement would bring in strengthening the PPI evidence base through a greater understanding of what works, for whom, in what circumstances and why.