Everyday built environments of care: Examining the socio-spatial relationalities of suburban neighbourhoods for people living with dementia
Everyday built environments of care: Examining the socio-spatial relationalities of suburban neighbourhoods for people living with dementia
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DOI：
10.1016/j.wss.2021.100058
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发表时间：
2021-01-01
影响因子：
--
通讯作者：
Dean, Jennifer
中科院分区：
文献类型：
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作者：
Biglieri, Samantha;Dean, Jennifer
美国政策顾问呼吁将对痴呆症患者（PLWD）的研究从卫生和社会部门扩展到城市规划。世界卫生组织预测，到2050年，全世界的艾滋病患者人数将从4700万增加到1.32亿，其中60-80%的艾滋病患者居住在社区（而不是聚集地）。对艾滋病患者来说，在获得服务方面得到社区的支持有许多好处：更多的社会互动、价值感、尊严和改善身心健康。由于艾滋病毒/艾滋病感染者可能会经历“世界缩小”效应，因此调查艾滋病毒/艾滋病感染者与其社区之间的社会空间关系十分重要。本研究从关系关怀的透镜出发，采用多种方法（半结构化访谈、GPS跟踪、旅行日记），试图了解七（7）名PLWD在其郊区社区的日常做法。艾滋病患者通过在过去、现在和未来照顾自己的过程与他们的社区互动，此外还（重新）组织他们新发现的相互依存的现实，并通过在公共场所与人和非人的接触得到照顾。这项研究展示了艾滋病患者在建筑环境中度过逆境的方式（“希望适应”），揭示了郊区的创新做法和结构性障碍。能够访问一个人的邻居是一种权利，这项研究突出了郊区社区的某些社会空间特征，通过关系关怀透镜，成为一个同时关心和粗心的地方。
There has been a call from US policy advisors to expand research on people living with dementia (PLWD) from health and social sectors to urban planning. The World Health Organization projects the number of PLWD to increase from 47 to 132 million worldwide by 2050, with 60-80% of PLWD residing within the community (as opposed to congregate settings). For PLWD, being supported by their neighbourhoods in terms of access has many benefits: more social interaction, sense of worth, dignity, and improved physical/mental health. As PLWD are likely to experience a "shrinking world" effect, it is important to investigate the socio-spatial relationality between PLWD and their neighbourhoods. Using a relational care lens, this research seeks to understand the everyday practices of seven (7) PLWD in their suburban neighbourhoods using multiple methods (semi-structured and go-along interviews, GPS tracking, travel diaries). PLWD interact with their neighbourhoods through processes of caring for self in the past, present, and future, in addition to (re)organizing their newfound interdependent realities and being cared for through human and more-than-human encounters in public spaces. This research demonstrated the ways in which PLWD were living through adversity in the built environment ("hopeful adaptation"), revealing innovative practices and structural barriers in suburban areas. Being able to access one's neighbourhood is a right, and this research highlights how certain socio-spatial characteristics of suburban neighbourhoods can, through a relational care lens, become a simultaneously caring and careless place.