What are the concerns of older adults living with epilepsy?
What are the concerns of older adults living with epilepsy?
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DOI：
10.1016/j.yebeh.2005.05.003
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发表时间：
2005-09-01
影响因子：
2.6
通讯作者：
Faught, E
中科院分区：
文献类型：
--
作者：
Martin, R;Vogtle, L;Faught, E
目的。这项工作的目的是调查老年人癫痫(OAE)患者对反复发作的担忧。对33名60岁以上的社区成年人(平均年龄=65岁，范围为60-80岁)进行了调查，以了解他们对癫痫的担忧。所有患者均接受难治性部分性癫痫治疗(发作时平均年龄37岁，范围1-77岁)，均接受抗癫痫药物治疗。患者被发给一张白纸，并被要求列出他们对癫痫患者生活的任何担忧。每个患者都按重要程度列出了他或她的担忧。OAE列出了28个不同的关注领域(每个患者的范围为1-6)。对驾驶/交通的担忧(%)和药物副作用(%)是最常见的担忧。20%的患者列出的其他担忧包括人身安全(39%)、AED费用(29%)、就业(26%)、社交尴尬(21%)和记忆力丧失(21%)。驾驶/运输和AED副作用是两个最重要的问题。OAE的生活质量问题在内容上似乎与年轻癫痫组的相似。驾驶/交通、角色限制(即祖父母角色)、就业、社交尴尬和安全是老年人表达的主要关切。然而，与早期对年轻患者的研究相比，药物副作用似乎更令老年人担忧。这项研究强调了老年人患有癫痫的巨大负担，并指出了临床医生在解决这些问题时面临的挑战。(C)2005 Elsevier Inc.保留所有权利。
Purpose. The goal of this work was to examine the concerns of living with recurrent seizures as expressed by older adults with epilepsy (OAE).Methods. Thirty-three community-dwelling adults over the age of 60 (mean age = 65, range 60-80) were surveyed as to their concerns living with epilepsy. All patients were being treated for intractable partial epilepsy (mean age at seizure onset = 37, range 1-77) and all were receiving antiepileptic drugs (AEDs). Patients were given a blank sheet of paper and asked to list any concerns they had about living with epilepsy. Each patient listed his or her concerns in order of importance.Results. Twenty-eight different areas of concern were listed by the OAE (range 1-6 per patient). Concerns about driving/transportation (64%) and medication side effects (64%) were the most frequently listed concerns. Other concerns listed by > 20% of patients included personal safety (39%), AED costs (29%), employment (26%), social embarrassment (21%), and memory loss (21%). Driving/transportation and AED side effects were the two most important concerns.Conclusions. Quality-of-life issues in OAE appear similar in content to those of younger epilepsy groups. Driving/transportation, role restriction (i.e., grandparenting role), employment, social embarrassment, and safety are major concerns expressed by older adults. However, medication side effects appear more concerning to older adults as compared with earlier studies with younger patients. This study highlights the substantial burden of living with epilepsy in older adults and points to the challenges clinicians have when addressing them. (c) 2005 Elsevier Inc. All rights reserved.