Enabling a Learning Health System through a Unified Enterprise Data Warehouse: The Experience of the Northwestern University Clinical and Translational Sciences (NUCATS) Institute.
Enabling a Learning Health System through a Unified Enterprise Data Warehouse: The Experience of the Northwestern University Clinical and Translational Sciences (NUCATS) Institute.
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DOI：
10.1111/cts.12294
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发表时间：
2015-08
期刊：
影响因子：
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通讯作者：
Lloyd-Jones DM
中科院分区：
文献类型：
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作者：
Starren JB;Winter AQ;Lloyd-Jones DM
270第8卷·第4期WWW。CTSJOURNAL。COM机构间信任。它还解决了HIPAA的“最低必要”要求。·在国家技术中心内选址：CTSA代表了一个真正的多机构结构。因此，当每个成员机构都关心对自己数据的控制时，它显然是EDW的地点。·共享资金模式：NMEDW由所有成员机构共同资助。因此，每一家机构都“参与了这场游戏”。NMEDW由一个代表临床和研究用户的九人指导委员会管理，并由NUCATS信息学负责人担任主席。指导委员会使用德尔福流程确定年度重大项目的优先顺序。每个成员组织提交一些提议的项目，NMEDW工作人员然后估计每个项目所需的大致工作量，指导委员会成员创建综合优先顺序。除指导委员会外，由各成员组织的首席信息官和国家技援中心信息学主管组成的全国经社部咨询委员会每两周举行一次会议。
270 VOLUME 8• ISSUE 4 WWW. CTSJOURNAL. COM interinstitutional trust. It also addresses the “minimum necessary” requirement of HIPAA.• Location within NUCATS: The CTSA represents a truly multi-institutional structure. Thus, it was the obvious location for the EDW when each member institution is concerned about control of its own data.• Shared funding model: The NMEDW is jointly funded by all member institutions. As a result, each institution has “skin in the game.” The NMEDW is governed by a nine member steering committee representing both clinical and research users, and chaired by the NUCATS informatics lead. Annual major project prioritization is conducted using a Delphi process by the steering committee. Each member organization submits a number of proposed projects, NMEDW staff then estimates approximate effort required for each, and the steering committee members create a composite priority ranking. In addition to the steering committee, an NMEDW Advisory Committee, consisting of the CIOs of the member organizations and the NUCATS informatics lead, meets biweekly.