Attitudes of Homebound Older Adults and Their Caregivers Toward Research and Participation as Research Advisors
Attitudes of Homebound Older Adults and Their Caregivers Toward Research and Participation as Research Advisors
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DOI：
10.1093/geront/gnaa189
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发表时间：
2021-01-05
期刊：
影响因子：
5.7
通讯作者：
Harrison, Krista L.
中科院分区：
文献类型：
--
作者：
England, Ashley L. Eaton;Ritchie, Christine S.;Harrison, Krista L.
背景和目的在以患者为中心的结果研究中，居家老年人及其照顾者历来没有作为顾问参与。本研究旨在了解居家长者及其照顾者对研究及作为研究顾问参与的态度。研究设计与方法对30名居家老年人和从居家医疗机构招募的护理人员进行半结构化访谈进行描述性主题分析。访谈问题涉及对研究的看法和作为研究顾问的偏好。结果在30名参与者中，22名是女性，17名是有色人种，11名有医疗补助。出现了两个与对总体研究的看法有关的主题：(a)研究的效用和(b)研究的相关性。总体而言，参与者报告了对研究的积极态度，并认为研究可以影响像他们一样的人。与作为研究顾问参与相关的三个主题出现了：(a)激励因素，(b)障碍，(c)偏好。参与者愿意以研究顾问的身份参与各种活动。大多数参与者的动机是帮助他人。常见的障碍包括时间限制和照顾责任，以及对居家个人的物理障碍。参与者还报告了他们的担忧，比如缺乏作为顾问的技能或专业知识。许多人愿意参与，如果这些障碍被容纳和分享他们的沟通偏好。不同的居家老年人和照顾者愿意作为研究顾问参与，并为未来的参与策略提供信息。研究结果可以为满足美国国立卫生研究院新的年龄包容性要求提供信息。
Background and Objectives Homebound older adults and their caregivers have not historically been engaged as advisors in patient-centered outcomes research. This study aimed to understand the attitudes of homebound older adults and their caregivers toward research and participation as research advisors. Research Design and Methods Descriptive thematic analysis of semistructured interviews conducted with 30 homebound older adults and caregivers recruited from home-based medical care practices. Interview questions addressed opinions on research and preferences for engaging as research advisors. Results Of 30 participants, 22 were female, 17 were people of color, and 11 had Medicaid. Two themes emerged related to perceptions of research overall: (a) utility of research and (b) relevance of research. Overall, participants reported positive attitudes toward research and felt that research could affect people like them. Three themes emerged related to participating as research advisors: (a) motivators, (b) barriers, and (c) preferences. Participants were open to engaging in a variety of activities as research advisors. Most participants were motivated by helping others. Common barriers included time constraints and caregiving responsibilities, and physical barriers for homebound individuals. Participants also reported fears such as lacking the skills or expertise to contribute as advisors. Many were willing to participate if these barriers were accommodated and shared their communication preferences. Discussion and Implications Diverse homebound older adults and caregivers are willing to be engaged as research advisors and provided information to inform future engagement strategies. Findings can inform efforts to meet new age-inclusive requirements of the National Institutes of Health.