"Better everyone should know our business than we lose our house": Costs and benefits of medical crowdfunding for support, privacy, and identity
"Better everyone should know our business than we lose our house": Costs and benefits of medical crowdfunding for support, privacy, and identity
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DOI：
10.1177/1461444816667723
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发表时间：
2018-02-01
影响因子：
5
通讯作者：
Fritz, Nicole
中科院分区：
文献类型：
--
作者：
Gonzales, Amy L.;Kwon, Elizabeth Y.;Fritz, Nicole
在美国，医疗众筹是应对巨额医疗费用的一种日益常见的应对措施。我们对 30 名代表自己或他人进行健康众筹（例如癌症、瘫痪、脑损伤）的个人进行了半结构化访谈，以更好地理解这一新现象，因为它为社会支持、身份和隐私理论提供了信息。首先，研究结果表明，众筹通常是工具性和情感性社会支持的资源。其次，许多众筹者权衡了支持的需要与感知到的隐私风险，这与隐私演算理论一致并扩展了。最后，高度脆弱的自我表露常常被重新解释为赋权，这也支持和扩展了身份转变的工作。使用众筹作为调查背景，研究结果指出了新的理论框架来描述用户如何满足隐私和在线支持的需求，以及身份谈判通常产生的积极后果。
In the United States, medical crowdfunding is an increasingly common response to overwhelming healthcare costs. Semi-structured interviews were conducted with 30 individuals crowdfunding for health (e.g. cancer, paralysis, brain injury) on behalf of themselves or others, to better understand this new phenomenon as it informs theory on social support, identity, and privacy. First, findings suggest that crowdfunding is often a resource for both instrumental and emotional social support. Second, many crowdfunders weighed the need for support against perceived privacy risks, which is consistent with and extends privacy calculus theory. Finally, highly vulnerable self-disclosures were often reinterpreted to be empowering, which also supports and extends work on identity shift. Using crowdfunding as a context for inquiry, findings point to new theoretical frameworks to describe how users navigate needs for both privacy and support online and the often positive consequences of that negotiation for identity.