Digital Support Platform: a qualitative research study investigating the feasibility of an internet-based, postdiagnostic support platform for families living with dementia
Digital Support Platform: a qualitative research study investigating the feasibility of an internet-based, postdiagnostic support platform for families living with dementia
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DOI：
10.1136/bmjopen-2017-020281
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发表时间：
2018-04-01
期刊：
影响因子：
2.9
通讯作者：
MacIntyre, Donald J.
中科院分区：
文献类型：
--
作者：
Killin, Lewis O. J.;Russ, Tom C.;MacIntyre, Donald J.
目的建立数字支持平台（DSP）的可行性，这是一个基于互联网的诊断后工具，专为患有痴呆症的家庭设计。设计定性方法，使用标准化过程理论作为半结构化访谈的分析框架。血管性或混合性痴呆（PWD），和他们的家庭照顾者，谁已经给予和使用DSP至少2 months.Results我们的分析显示，DSP主要是理解和使用的照顾者，而不是PWD，和一起使用的工具和方法，他们已经用来照顾他们的亲属。DSP被解释为一种工具，可能对那些经历痴呆症后期或有身体护理需要的人有益。照顾者表示，DSP可能在未来受益，反映了不愿意为未来的需求做准备或预测，而不是专注于分发时存在的需求。PWD积极谈到学习更有效地使用技术的兴趣，并享受自己的平板设备。结论DSP是不完全适合痴呆症患者的家庭生活在其早期阶段。照顾者的意见证实，诊断后的支持是有价值的，但强调了根据家庭的确切需要和目前安排调整这种支持的重要性。向那些目前无法访问的残疾人介绍、鼓励、提供和教授互联网技术可能是有益的。在向残疾人士介绍新科技时，应提供培训。
Objectives To establish the feasibility of the Digital Support Platform (DSP), an internet-based, postdiagnostic tool designed for families living with a diagnosis of dementia.Design Qualitative methods using normalisation process theory as an analysis framework for semistructured interview transcriptions.Setting A community care setting in the South-East Scotland.Participants We interviewed 10 dyads of people with Alzheimer's, vascular or mixed dementia (PWD), and their family carers, who had been given and had used the DSP for at least 2 months.Results Our analysis revealed that the DSP was predominantly understood and used by the carers rather than PWD, and was used alongside tools and methods they already used to care for their relative. The DSP was interpreted as a tool that may be of benefit to those experiencing later stages of dementia or with physical care needs. Carers stated that the DSP may be of benefit in the future, reflecting a disinclination to prepare for or anticipate for future needs, rather than focus on those needs present at the time of distribution. PWD spoke positively about an interest in learning to use technology more effectively and enjoyed having their own tablet devices.Conclusions The DSP was not wholly appropriate for families living with dementia in its early stages. The views of carers confirmed that postdiagnostic support was valued, but emphasised the importance of tailoring this support to the exact needs and current arrangements of families. There may be a benefit to introducing, encouraging, providing and teaching internet-enabled technology to those PWD who do not currently have access. Training should be provided when introducing new technology to PWD.