A. Perner et al. Lebensqualität pflegender Angehöriger von Palliativpatienten Lebensqualität und Zufriedenheit pflegender Angehöriger von krebskranken Palliativpatienten – Befragung nach Versterben der Patienten
A. Perner et al. Lebensqualität pflegender Angehöriger von Palliativpatienten Lebensqualität und Zufriedenheit pflegender Angehöriger von krebskranken Palliativpatienten – Befragung nach Versterben der Patienten
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A. Perner 等人 – Befragung nach Versterben der Patienten
DOI：
10.13109/zptm.2012.58.3.267
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发表时间：
2012
影响因子：
0.9
通讯作者：
H. Götze
中科院分区：
文献类型：
--
作者：
Andrea Perner;N. Köhler;E. Brähler;H. Götze
引言：家庭照顾者在姑息治疗中发挥着重要作用。然而，关注这些家庭照顾者生活质量的研究数量有限。目前的研究评估了丧亲家庭成员的生活质量和对医疗服务的满意度。材料和方法：比较了（1）男性与女性家庭照顾者（N = 44）和（2）丧失亲人的家庭照顾者与一般人群（EORTC QLQ-C30）。此外，家庭照顾者的医疗服务的满意度进行了评估后，他们的亲属（ZUF希望）死亡。这些访谈是在姑息治疗患者死亡后6至8周进行的。结果：在生活质量方面，丧亲家庭照顾者的情绪功能和一般生活质量都有所下降。女性照顾者的功能价值较低，失眠、疲劳和疼痛症状较男性照顾者严重。失去亲人的家庭照顾者的生活质量低于一般人群。回顾过去，家庭照顾者对门诊姑息治疗的大部分方面都非常满意。丧亲家庭成员批评的唯一方面是缺乏心理社会支持。结论：家庭照顾者需要更强的支持，以防止倦怠和改善门诊服务。在这方面，还必须考虑到性别差异。
INTRODUCTION: Family caregivers play an important role in palliative care. However, the number of studies focussing on the quality of life of these family caregivers is limited. The current study evaluates quality of life and satisfaction with medical care in bereaved family members. MATERIAL AND METHODS: Comparisons were made between (1) male vs. female family caregivers (N = 44) and (2) bereaved family caregivers vs. general population (EORTC QLQ-C30). Furthermore, the satisfaction of the family caregivers with medical care was assessed after the death of their relatives (ZUF HOPE). The interviews were conducted between six and eight weeks following the death of the palliative patients. RESULTS: Regarding quality of life, bereaved family caregivers suffered from both reduced emotional functioning and general quality of life. Female caregivers had lower functional values and stronger symptoms of insomnia, fatigue and pain than male caregivers. Bereaved family caregivers had a lower quality of life than the general population. Retrospectively, family caregivers were very satisfied with most aspects of outpatient palliative care. The only aspect criticised by the bereaved family members was a lack of psycho-social support. CONCLUSION: Family caregivers need stronger support in order to prevent burnout and to improve outpatient care. In this context, gender differences must also be considered.
影响因子：
1.9
作者：
Given, B;Wyatt, G;Rahbar, M
通讯作者：
Rahbar, M