DEVELOPMENT OF A DISABILITY MEASUREMENT TOOL FOR JUVENILE RHEUMATOID-ARTHRITIS - THE JUVENILE ARTHRITIS FUNCTIONAL ASSESSMENT REPORT FOR CHILDREN AND THEIR PARENTS
DEVELOPMENT OF A DISABILITY MEASUREMENT TOOL FOR JUVENILE RHEUMATOID-ARTHRITIS - THE JUVENILE ARTHRITIS FUNCTIONAL ASSESSMENT REPORT FOR CHILDREN AND THEIR PARENTS
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DOI：
10.1002/art.1780340713
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发表时间：
1991-07-01
影响因子：
--
通讯作者：
LOVELL, D
中科院分区：
文献类型：
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作者：
HOWE, S;LEVINSON, J;LOVELL, D
我们开发了两份问卷来衡量幼年类风湿性关节炎 (JRA) 造成的残疾，一份基于患者报告，另一份基于家长报告。 这些调查问卷被称为儿童青少年关节炎功能评估报告 (JAFAR-C) 和家长 (JAFAR-P)。 问卷调查对象为 72 名 7-18 岁的 JRA 患者及其父母。 受访者对患者近期进行 23 项活动的能力进行了评分。 发现患者报告和家长报告彼此高度相关，并且与治疗师进行的客观评估高度相关。 问卷得分与患者年龄没有显着相关性。 JAFAR 似乎是 JRA 患者残疾的一种方便、可靠且有效的衡量标准。
Two questionnaires were developed for measuring disability due to juvenile rheumatoid arthritis (JRA), one based on patient reports and one on parent reports. These questionnaires were termed the Juvenile Arthritis Functional Assessment Report for Children (JAFAR-C) and for Parents (JAFAR-P). The questionnaires were administered to 72 JRA patients ages 7-18 years and to their parents. Respondents rated the patient's recent ability to perform 23 activities. Patient reports and parent reports were found to correlate highly with each other and with an objective assessment performed by therapists. Questionnaire scores did not correlate significantly with the age of the patient. The JAFAR appears to be a convenient, reliable, and valid measure of disability in patients with JRA.