The unique pathways to coordinate specialty care for Black families navigating early psychosis: A preliminary report.
The unique pathways to coordinate specialty care for Black families navigating early psychosis: A preliminary report.
复制标题
协调黑人家庭应对早期精神病的专业护理的独特途径：初步报告。
DOI：
10.1016/j.schres.2021.11.004
复制
发表时间：
2023
影响因子：
4.5
通讯作者：
Stokes,Bryony
中科院分区：
文献类型：
--
作者：
Oluwoye,Oladunni;Stokes,Bryony
背景厌恶的途径，以协调专业护理（CSC）的首次发病精神病已被链接到未经治疗的精神病，有限的参与和治疗结果的持续时间延长。然而，已经有非常有限的研究，只是探索了独特的途径，以照顾黑人家庭在美国本研究利用定性的方法来探索的途径，以CSC黑人个体经历他们的第一次发作的精神病和他们的家庭members.MethodsIndividuals谁是或正在注册的CSC程序和/或他们的家庭成员被招募参加半结构化的定性访谈。在CSC启动之前，使用定性访谈来描述事件和经历。所有的采访逐字转录和分析使用一个定性的描述性approach.ResultsA共招募了14名参与者完成半结构化访谈。研究结果显示，在前驱期参与者注意到社会功能的变化，确定以前的童年经历被视为创伤，并寻求很少的帮助，从正式的来源。精神病发作后，大多数参与者强调了家庭成员在开始护理方面的重要性，但也表示难以导航服务和与临床工作人员接触，导致CSC的启动进一步延迟。结论本研究的发现有助于了解服务利用方面已知的差异，并可能确定可以利用的领域来改善用户体验，寻找CSC的黑人家庭。
BackgroundAversive pathways to coordinated specialty care (CSC) for first episode psychosis have been linked to the extended duration of untreated psychosis, limited engagement, and treatment outcomes. Yet there has been very limited research that has solely explored the unique pathways to care among Black families in the U.S. This study utilized qualitative methods to explore the pathways to CSC among Black individuals experiencing their first episode of psychosis and their family members.MethodsIndividuals who were or are enrolled in CSC programs and/or their family members were recruited to participate in semi-structured qualitative interviews. Qualitative interviews were used to characterize events and experiences prior to the initiation of CSC. All interviews were transcribed verbatim and analyzed using a qualitative descriptive approach.ResultsA total of 14 participants were recruited to complete semi-structured interviews. Findings revealed that during prodromal phase participants noticed changes in social functioning, identified prior childhood experiences that were viewed as traumatic, and sought very little help from formal sources. After the onset of psychosis, the majority of participants highlighted the importance of family members in the initiation of care, yet also expressed difficulties navigating services and engaging with clinical staff, contributing to further delays to the initiation of CSC.ConclusionsFinding from this study sheds light on understanding known disparities in utilization of services and potentially identifies areas that can be leveraged to improve the experiences for Black families seeking CSC.