Parents' views of involvement in concurrent research with their neonates.
Parents' views of involvement in concurrent research with their neonates.
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DOI：
10.1525/jer.2010.5.2.47
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发表时间：
2010-06
期刊：
影响因子：
--
通讯作者：
Ward FR
中科院分区：
文献类型：
--
作者：
Ward FR
研究人员和生物伦理学家在决定是否让婴儿参加临床试验时，更多地了解父母的决策过程和情绪状态将是有用的。这项研究的目的是发现那些以前被要求将他们的新生儿纳入临床试验的父母是否会发现关于他们决策的同步研究过于繁重。27名危重新生儿的父母被问及他们认为他们的孩子参与临床试验的研究决策过程中被采访的潜在负担或价值。对于这个定性描述性研究，访谈录音，转录，并使用内容分析技术进行分析。与会者认为，并行研究对他们来说是可以接受的，但对其他人来说可能是有问题的。风险偏好和社会比较理论可以解释这些发现。
It would be useful to researchers and bioethicists to know more about parents’ decision processes and emotional state during the time they are deciding whether to enroll their infant in a clinical trial. The aim of this research study was to discover whether parents who had been previously asked to enroll their neonates in clinical trials would have found concurrent research about their decision-making overly burdensome. Twenty-seven parents of critically ill neonates who had been approached for their child’s research participation in a clinical trial were asked what they believed about the potential burden or value of being interviewed during the time of research decision-making about their infant’s participation. For this qualitative descriptive study, interviews were audio-recorded, transcribed, and analyzed using content analysis techniques. Participants considered concurrent research acceptable for them but potentially problematic for others. Theories of risk preferences and social comparison might explain these findings.
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影响因子：
3.2
作者：
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通讯作者：
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DOI：
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发表时间：
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影响因子：
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