Men, chronic illness and healthwork: accounts from male partners of women with endometriosis.
Men, chronic illness and healthwork: accounts from male partners of women with endometriosis.
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DOI：
10.1111/1467-9566.13144
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发表时间：
2020-06
影响因子：
2.9
通讯作者：
N. Hudson;C. Law;L. Culley;H. Mitchell;E. Denny;W. Norton;N. Raine-Fenning
中科院分区：
文献类型：
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作者：
N. Hudson;C. Law;L. Culley;H. Mitchell;E. Denny;W. Norton;N. Raine-Fenning
目前在医学话语中占主导地位的是自我管理的概念，认为健康和疾病的责任从国家转移到个人。然而，虽然这种对个人责任和管理的强调已经蓬勃发展，但伴侣和其他家庭成员在慢性病管理中的作用和地位仍然没有得到充分的理论化。虽然自我管理赋予个人管理慢性病的责任，但伙伴的作用仍然不清楚。本文利用一项研究的数据，异性恋夫妇的经验，生活与慢性妇科疾病子宫内膜异位症，探讨男性伴侣如何从事其日常管理。在所有，22对夫妇参加了深入的，半结构化的采访，每个合作伙伴单独采访（n = 44）。数据进行了分析的主题和dyadically，由一个解释主义的关系的方法。本文运用健康工作的概念描述了健康工作者所从事的疾病工作、日常生活工作、传记工作和情感工作。本文展示了如何通过纳入管理慢性病所需的情感努力的分析，提高卫生工作的概念价值。该文件说明了调查的作用，合作伙伴在管理慢性疾病，提供一个更充分的帐户的分布和关系性质的卫生工作的价值。
Currently dominant in medical discourse, the concept of self-management sees the responsibility for health and illness shift from the state to the individual. However, while this emphasis on individual responsibility and management has burgeoned, the role and status of partners and other family members in the management of chronic illness remains under-theorised. While self-management privileges individual responsibility for the management of chronic illness, the role of partners remains unclear. This paper utilises data from a study of heterosexual couples' experiences of living with the chronic gynaecological condition endometriosis to explore how male partners engage in its day-to-day management. In all, 22 couples participated in in-depth, semi-structured interviews with each partner interviewed separately (n = 44). Data were analysed thematically and dyadically, informed by an interpretivist relational approach. The paper utilises the concept of healthwork to describe the illness work, everyday life work, biographical work and emotion work men engaged in. The paper demonstrates how the conceptual value of healthwork is enhanced by incorporating an analysis of the emotional effort required in managing chronic illness. The paper illustrates the value of investigating the role of partners in managing chronic illness to provide a fuller account of the distributed and relational nature of healthwork.