'It might happen or it might not': how patients with multiple sclerosis explain their perception of prognostic risk
'It might happen or it might not': how patients with multiple sclerosis explain their perception of prognostic risk
复制标题
DOI：
10.1016/j.socscimed.2003.11.040
复制
发表时间：
2004-08-01
影响因子：
5.4
通讯作者：
Janssens, ACJW
中科院分区：
文献类型：
--
作者：
Boeije, HR;Janssens, ACJW
本定性研究旨在探讨多发性硬化症患者对轮椅依赖的风险认知和严重性。使用视觉模拟量表（VAS）评估轮椅依赖的2年、10年和终生预后的绝对风险和严重性。在半结构化访谈中，要求患者（n = 85）阐明这些VAS评分。在解释感知的绝对风险时，患者提到了疾病相关因素以及心理因素。对未来疾病进展的不确定性是所有患者的主要因素，即使是那些对风险的认知程度低和高的患者。依赖轮椅被认为是一种严重的后果，主要是因为它可能产生的影响，如丧失独立性。当对轮椅依赖的2年、10年和终生前景的看法进行比较时，发现患者对绝对风险的看法存在歧视，但对严重性的看法较少。定量和定性评估的比较表明，良好的结构效度感知的绝对风险和严重性的轮椅依赖。(C)2003爱思唯尔有限公司。保留所有权利。
This qualitative study aimed to examine risk perception and seriousness of wheelchair dependence in patients with multiple sclerosis. Perceived absolute risk and perceived seriousness were assessed for 2-year, 10-year and lifetime prognosis of wheelchair dependence using visual analogue scales (VAS). In semi-structured interviews, patients (n = 85) were asked to elucidate these VAS scores. Explaining perceived absolute risk, patients mentioned disease-relatcd factors as well as psychological factors. Uncertainty about future disease progression was a predominant factor for all patients, even those with low and high perceptions of risk. Wheelchair dependence was perceived as a serious outcome primarily because of its possible implications, such as loss of independence. When perceptions of 2-year, 10-year and the lifetime prospect of wheelchair dependence were compared, it was found that patients discriminated in their perception of absolute risk, but less in that of seriousness. Comparison of quantitative and qualitative assessments indicated good construct validity for perception of the absolute risk and seriousness of wheelchair dependence. (C) 2003 Elsevier Ltd. All rights reserved.