Disentangling Function from Benefit: Participant Perspectives from an Early Feasibility Trial for a Novel Visual Cortical Prosthesis.
Disentangling Function from Benefit: Participant Perspectives from an Early Feasibility Trial for a Novel Visual Cortical Prosthesis.
复制标题
将功能与益处分开：新型视觉皮层假体早期可行性试验的参与者观点。
DOI：
10.1080/21507740.2023.2257152
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发表时间：
2023
影响因子：
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通讯作者：
Feinsinger,Ashley
中科院分区：
文献类型：
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作者：
Levy,Lilyana;Ebadi,Hamasa;PeabodySmith,Ally;Taiclet,Lauren;Pouratian,Nader;Feinsinger,Ashley
视觉皮层假体（VCP）具有为视力受损者提供人工视觉的潜力。然而，这种形式的视觉的性质和效用尚未完全理解。Orion VCP早期可行性试验的参与者接受了采访，以深入了解他们使用人工视觉的经验，他们参与的动机以及他们对风险和收益的期望和评估。使用扎根理论和解释性描述方法的原则进行分析，这些访谈产生了六个主题，包括：设备功能的受益不可减少，对短期设备功能和视觉假体长期技术进步的混合期望，以及与试验参与相关的广泛风险，担忧和恐惧。我们认为，这些叙述激发了一系列微妙的伦理考虑，这些考虑涉及功能和受益之间的复杂关系，用户体验与残疾公正的交叉点，以及对同意的期望和间接风险的导入。
Visual cortical prostheses (VCPs) have the potential to provide artificial vision for visually impaired persons. However, the nature and utility of this form of vision is not yet fully understood. Participants in the early feasibility trial for the Orion VCP were interviewed to gain insight into their experiences using artificial vision, their motivations for participation, as well as their expectations and assessments of risks and benefits. Analyzed using principles of grounded theory and an interpretive description approach, these interviews yielded six themes, including: the irreducibility of benefit to device functionality, mixed expectations for short-term device functionality and long-term technological advancement of visual prostheses, and a broad range of risks, concerns, and fears related to trial participation. We argue that these narratives motivate a nuanced set of ethical considerations related to the complex relationship between functionality and benefit, the intersection of user experience with disability justice, and the import of expectations and indirect risks on consent.