Speech Versus Speaking: The Experiences of People With Parkinson's Disease and Implications for Intervention.
Speech Versus Speaking: The Experiences of People With Parkinson's Disease and Implications for Intervention.
复制标题
言语与言语：帕金森病患者的经历及其干预的意义。
DOI：
10.1044/2017_ajslp-16-0087
复制
发表时间：
2017
影响因子：
2.6
通讯作者：
Britton,Deanna
中科院分区：
文献类型：
--
作者：
Yorkston,Kathryn;Baylor,Carolyn;Britton,Deanna
在这个项目中，我们探索了报告与帕金森病相关的言语变化的人的经历，他们描述了参与日常交流的情景，并报告了与言语治疗相关的印象。方法24名居住在社区的帕金森病成年人参加了面对面的半结构访谈。定性研究方法被用来编码和开发与访谈相关的主题。第一个主题叫做“演讲”，包括几个主题：思考演讲，权衡价值与努力，与演讲相关的感受，演讲的环境背景，以及帕金森氏症对演讲的影响。第二个主题涉及“治疗经历”，包括副主题：选择不接受治疗，临床医生，训练和锻炼，以及改变的建议。结论从帕金森氏症参与者的角度来看，说话是一项需要体力和认知努力的活动，发生在社会背景下。尽管许多人报告了在言语治疗方面的积极经验，但也有一些人报告说，他们对言语训练和练习不满意，而且缺乏对沟通的社交方面的关注。改进的建议包括更多地关注说话的认知需求和交流的心理社会方面。
PurposeIn this project, we explore the experiences of people who report speech changes associated with Parkinson's disease as they describe taking part in everyday communication situations and report impressions related to speech treatment.MethodTwenty-four community-dwelling adults with Parkinson's disease took part in face-to-face, semistructured interviews. Qualitative research methods were used to code and develop themes related to the interviews.ResultsTwo major themes emerged. The first, called “speaking,” included several subthemes: thinking about speaking, weighing value versus effort, feelings associated with speaking, the environmental context of speaking, and the impact of Parkinson's disease on speaking. The second theme involved “treatment experiences” and included subthemes: choosing not to have treatment, the clinician, drills and exercise, and suggestions for change.ConclusionsFrom the perspective of participants with Parkinson's disease, speaking is an activity requiring both physical and cognitive effort that takes place in a social context. Although many report positive experiences with speech treatment, some reported dissatisfaction with speech drills and exercises and a lack of focus on the social aspects of communication. Suggestions for improvement include increased focus on the cognitive demands of speaking and on the psychosocial aspects of communication.