Transition from hospital to home following pediatric solid organ transplant: Qualitative findings of parent experience
Transition from hospital to home following pediatric solid organ transplant: Qualitative findings of parent experience
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DOI：
10.1111/petr.12269
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发表时间：
2014-08-01
影响因子：
1.3
通讯作者：
Alonso, Estella M.
中科院分区：
文献类型：
--
作者：
Lerret, Stacee M.;Weiss, Marianne E.;Alonso, Estella M.
由于从移植儿童父母的角度对出院后经历的背景进行的研究有限，移植提供者面临着为患者和家庭确定适当干预措施的挑战。这项研究的目的是描述父母对孩子进行实体器官移植后从医院过渡到家庭的看法。在一项混合方法设计中，来自三家儿科医院的37名接受心脏、肾脏和肝脏移植的儿科患者的父母在出院当天和出院后三周回答了定性访谈问题。对出院准备过程的洞察揭示了必要的教育内容。出院后的主题被确定为应对、知识和坚持。父母的反应使他们意识到，当他们的孩子在实体器官移植后出院时，父母面临的具体压力和担忧，以及移植团队可以提供支持的方式的机会。
Transplant providers are challenged to determine appropriate interventions for patients and families due to limited published research regarding the context of the post-discharge experience from the perspective of parents of transplanted children. The purpose of this study is to describe the parent perspective of the transition from hospital to home following their child's solid organ transplant. Within a mixed-methods design, 37 parents of pediatric heart, kidney, and liver transplant recipients from three pediatric hospitals responded to qualitative interview questions on the day of hospital discharge and three wk following hospital discharge. Insight to the discharge preparation process revealed necessary education components. Post-discharge themes were identified for coping, knowledge, and adherence. The parents' responses provide awareness as to specific stressors and concerns parents are faced with when their child is discharged from the hospital after solid organ transplant and opportunities for ways the transplant team can provide support.