Focus groups for developing a peer mentoring program to improve self-management in pediatric inflammatory bowel disease.
Focus groups for developing a peer mentoring program to improve self-management in pediatric inflammatory bowel disease.
复制标题
用于制定同伴指导计划的焦点小组，以改善小儿炎症性肠病的自我管理。
DOI：
10.1097/mpg.0000000000000473
复制
发表时间：
2014-10
影响因子：
2.9
通讯作者：
Vannatta K
中科院分区：
文献类型：
--
作者：
Mackner LM;Ruff JM;Vannatta K
炎症性肠病（IBD）在许多领域对自我管理提出了挑战。同伴指导计划可能比其他形式的自我管理干预措施更有优势，因为年轻人可能比父母或专业人士更容易接受从同伴那里学习自我管理技能。本研究的目的是从焦点小组中确定主题，以告知同伴指导计划的发展，以改善儿科IBD的自我管理。对12 - 17岁的青少年进行焦点组，按年龄（3组; n=14）、18 - 20岁的年轻人（1组; n=5）和青少年的父母（3组; n=17）分层。广泛的问题，包括程序目标，一般程序的特点，导师/学员的特点和家庭参与，和transmittance进行了分析，通过定向内容分析，与先验代码指定为上述广泛的问题。参与者确定了一个方案的主要目标是支持，榜样，信息/教育和乐趣。他们描述了一个计划，该计划将包括与患有IBD至少一年的同龄人建立为期一年的一对一导师关系，教育小组活动，不关注IBD的有趣活动，每月1 - 2次面对面接触的期望，以及导师对导师和家长的支持。焦点小组的许多建议与成功的辅导计划相关的研究结果相一致。使用参与者的建议和基于实践的最佳指导实践可能会导致有效的同伴指导计划，以改善IBD青年的自我管理。
Inflammatory bowel disease (IBD) presents challenges for self-management in many areas. A peer mentoring program may offer advantages over other forms of self-management interventions since youth may be more receptive to learning self-management skills from a peer than a parent or professional. The purpose of this study was to identify themes from focus groups to inform development of a peer mentoring program for improving self-management in pediatric IBD. Focus groups were conducted for youth ages 12 – 17, stratified by age (3 groups; n=14), young adults ages 18 – 20 (1 group; n=5), and parents of the youth (3 groups; n=17). Broad questions covered program goals, general program characteristics, mentor/mentee characteristics and family involvement, and transcriptions were analyzed via directed content analysis, with the a priori codes specified as the broad questions above. Participants identified the primary goals of a program as support, role model, information/education and fun. They described a program that would include a year-long, oneon-one mentor relationship with a peer who has had IBD for at least a year, educational group activities, fun activities that are not focused on IBD, expectations for in-person contact 1 – 2 times per month, and mentor-to-mentor and parent support. Many of the suggestions from the focus groups correspond with research findings associated with successful mentoring programs. Using participants’ suggestions and empirically-based best practices for mentoring may result in an effective peer mentoring program for improving self-management in youth with IBD.