Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology
Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology
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DOI：
10.1093/eurjhf/hfp041
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发表时间：
2009-05-01
影响因子：
18.2
通讯作者：
McMurray, John
中科院分区：
文献类型：
--
作者：
Jaarsma, Tiny;Beattie, James M.;McMurray, John
心力衰竭是一种严重的疾病，就症状负担和死亡率而言相当于恶性疾病。目前，只有相对少数的心力衰竭患者接受专业姑息治疗。心力衰竭患者可能有一般的姑息治疗需求，例如难治性多方面症状、沟通和决策问题以及家庭支持的需求。欧洲心脏病学会心力衰竭协会高级心力衰竭研究小组组织了一次研讨会，讨论心力衰竭的姑息治疗问题，以提高人们对姑息治疗必要性的认识。其他目标包括提高心力衰竭患者姑息治疗的可及性和质量，并促进整个欧洲以心力衰竭为导向的姑息治疗服务的发展。本文件综合了研讨会期间的演讲和讨论，并描述了向患者和家庭提供优质护理、教育、治疗协调、研究和政策等领域的建议。
Heart failure is a serious condition and equivalent to malignant disease in terms of symptom burden and mortality. At this moment only a comparatively small number of heart failure patients receive specialist palliative care. Heart failure patients may have generic palliative care needs, such as refractory multifaceted symptoms, communication and decision making issues and the requirement for family support. The Advanced Heart Failure Study Group of the Heart Failure Association of the European Society of Cardiology organized a workshop to address the issue of palliative care in heart failure to increase awareness of the need for palliative care. Additional objectives included improving the accessibility and quality of palliative care for heart failure patients and promoting the development of heart failure-orientated palliative care services across Europe. This document represents a synthesis of the presentations and discussion during the workshop and describes recommendations in the area of delivery of quality care to patients and families, education, treatment coordination, research and policy.