Children Navigating Parental Cancer: Outcomes of a Psychosocial Intervention
Children Navigating Parental Cancer: Outcomes of a Psychosocial Intervention
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儿童应对父母癌症：社会心理干预的结果
DOI：
10.1080/24694193.2019.1582727
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发表时间：
2020
期刊：
影响因子：
--
通讯作者：
C. Semple
中科院分区：
文献类型：
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作者：
C. O’Neill;C. O'Neill;C. Semple
研究表明，在年轻人中癌症的患病率显著增加，多达五分之一的人养育着18岁以下的孩子。当父母被诊断出患有癌症时，他们会感到恐惧和焦虑，因为他们试图同时管理自己作为父母的角色和疾病经历。家长们表示，在整个疾病过程中，他们很难知道如何与孩子进行适当的沟通，因为他们主要关注的是保护或屏蔽孩子不了解疾病。可以理解的是，父母可能会因父母的压力而不堪重负，影响他们的心理健康。这随后影响到整个家庭单位的福祉，再加上日常生活、角色和责任的变化。这项研究的目的是研究一个团体心理社会干预儿童的生活包括勇敢的时刻（CLIMB®）如何帮助幼儿导航父母癌症。一个定性的研究设计，利用焦点小组的方法，艺术品和个人访谈被用来生成数据，从19名参与者（父母，儿童和医疗保健专业人员）。数据中出现了三个关键主题，导航诊断，导航情绪和改变常规，创造谈论癌症的空间。调查结果证明，参加CLIMB®对儿童和家长来说都是一种积极的体验。它给了孩子们表达他们的恐惧和担忧的语言和机会。CLIMB®为他们提供了表达和管理负面情绪的工具和技能，这些生活技能可以转移到其他具有挑战性的生活事件中。所有的技巧都创造了谈话的空间，似乎对孩子们有一种安慰的效果。家长们感谢结构化干预为他们提供的专业支持，并帮助他们更开放地与孩子沟通。当父母患癌症时，创造谈论癌症的空间可以减少父母和孩子之间的不信任和紧张关系，并有望最大限度地减少未来的心理和社会问题。
ABSTRACT Research has evidenced a marked increase in the prevalence of cancer among younger people with up to one in five, parenting children under the age of 18 years of age. When a parent is diagnosed with cancer they experience fears and anxieties as they attempt to simultaneously manage their role as a parent, with the illness experience. Parents have expressed difficulties in knowing how to communicate appropriately with their children throughout the illness trajectory as they are primarily focused on protecting or shielding their children from knowledge of the illness. Understandably parents may become overwhelmed with significant parental stress impacting on their psychological well-being. This subsequently affects the well-being of the entire family unit, coupled with changes to routines, roles, and responsibilities. This study was carried out to examine how a group psychosocial intervention Children’s Lives Include Moments of Bravery (CLIMB®) helped young children to navigate parental cancer. A qualitative research design utilizing focus group methodology, artwork and individual interviews was used to generate data from 19 participants (parents, children, and health-care professionals). Three key themes emerged from the data, navigating the diagnosis, navigating emotions and changed routines, creating spaces to talk about cancer. The findings evidenced that attending CLIMB® was a positive experience for both children and parents. It gave the children the language and opportunity to express their fears and worries. CLIMB® equipped them with tools and skills to both express and manage their negative emotions, life skills that could be transferred to other challenging life events. All techniques that created spaces to talk and appeared to have a reassuring effect on the children. The parents appreciated the professional support that the structured intervention offered to them and helped them communicate more openly with their children. Creating spaces to talk about cancer reduces mistrust and tension between parents and children, when parental cancer occurs, and hopefully minimizes future psychological and social problems.