A content analysis of the consumer-facing online information about My Health Record: Implications for increasing knowledge and awareness to facilitate uptake and use

A content analysis of the consumer-facing online information about My Health Record: Implications for increasing knowledge and awareness to facilitate uptake and use
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对面向消费者的有关“我的健康记录”的在线信息进行内容分析:对增加知识和意识以促进吸收和使用的影响

DOI:
10.1177/1833358317712200
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发表时间:
2018
影响因子:
3.2
通讯作者:
B. Hemsley
B. Hemsley
中科院分区:
医学3区
文献类型:
--
作者:
Louisa Walsh;S. Hill;Meredith Allan;S. Balandin;A. Georgiou;I. Higgins;Ben Kraal;Shaun Mccarthy;B. Hemsley

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背景资料:健康素养低、积极信念水平低以及隐私和安全问题已被确定为个人电子健康记录吸收和使用的重大障碍。克服这些障碍的一个重要工具是伴随系统的面向消费者的信息。我的健康记录(MyHR)是澳大利亚国家电子健康记录系统,其中有一个大型的在线资源套件,以方便消费者注册和使用。这项研究使用了许多不同的医疗资源质量指标来评估MyHR在线面向消费者的信息,并确定任何差距或需要改进的领域。目的:分析支持MyHR吸收和使用的面向消费者的在线资源的质量和内容。方法:澳大利亚的信息资源,针对医疗保健消费者的MyHR纳入本研究。使用互联网搜索引擎进行了全面搜索,以找到所有来自政府和非政府来源的关于MyHR的在线面向消费者的资源。可读性(测量Flesch-Kincaid等级),年出版/审查,出版组织类型,演示风格,链接的网站,目标受众和主题被确定为健康信息质量的重要措施,这些都被记录和报告的每一个资源。结果:80个资源符合纳入标准。平均Flesch-Kincaid分级水平为11.8。大多数资源是由澳大利亚政府来源(n = 55),最常见的目标受众是一般公众(n = 65)。注册(n = 51),隐私/安全(n = 49)和使用的好处(n = 46)是最常见的资源主题。结论:作者确定了一些差距和改进领域,在提供面向消费者的信息MyHR。对于澳大利亚普通民众来说,可读性太高,翻译资源很少,这意味着所提供的信息不能满足识字水平低、沟通障碍和/或理解书面英语有困难的人的需要。资源的目标受众没有反映MyHR开发过程中确定的优先群体。关于消费者如何使用MyHR作为工具,与卫生专业人员和服务进行有意义的接触,以支持他们自己的以人为本的护理,在信息提供方面也存在差距。
Background: Low health literacy, low levels of positive belief and privacy and security concerns have been identified as a significant barrier to personal electronic health record uptake and use. An important tool for overcoming these barriers is the consumer-facing information which accompanies the system. My Health Record (MyHR) is the Australian national e-health record system, for which a large suite of online resources exists to facilitate consumer registration and use. This study uses a number of different measures of health resource quality to assess the MyHR online consumer-facing information and identify any gaps or areas for improvement. Objective: To analyse the quality and content of the online consumer-facing resources which support the uptake and use of MyHR. Method: Australian information resources aimed at healthcare consumers about the MyHR were included in this study. A comprehensive search using Internet search engines was conducted to locate all online consumer-facing resources about MyHR from both government and non-government sources. Readability (measured by Flesch–Kincaid grade level), year of publication/review, publishing organisation type, presentation style, linked websites, target audience, and themes were identified as important measures of health information quality, and these were recorded and reported on for each resource. Results: Eighty resources met the inclusion criteria. The mean Flesch–Kincaid grade level was 11.8. Most resources were created by Australian government sources (n = 55), and the most common target audience was the general public (n = 65). Registration (n = 51), privacy/security (n = 49), and benefits of use (n = 46) were the most common resource themes. Conclusion: The authors identified a number of gaps and areas for improvement in the provision of consumer-facing information about MyHR. Readability is too high for the general Australian population, and there are few translated resources, which means that the information provided does not cater to people with low literacy levels, communication disability, and/or difficulties in understanding written English. The target audiences for resources do not reflect priority groups that were identified during the MyHR development processes. There are also gaps in information provision about how consumers can use MyHR as a tool to meaningfully engage with health professionals and services to support their own person-centred care.