Information support for cancer survivors
Information support for cancer survivors
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DOI：
10.1002/cncr.23445
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发表时间：
2008-06-01
期刊：
影响因子：
6.2
通讯作者：
Rutten, Lila J. Finney
中科院分区：
文献类型：
--
作者：
Hesse, Bradford K.;Arora, Neeraj K.;Rutten, Lila J. Finney
幸存者的信息寻求行为传统上是通过分析对热线和癌症信息服务的询问来记录的。来自这些自行选择的询问的数据往往限于诊断前后的时间，以及那些拥有必要资金和动力积极寻求信息的人群。目前的研究使用了一般人口调查的数据来评估1)一般人群中幸存者的信息寻求行为的流行率，2)寻求者与非寻求者的特征，3)信息寻求经验的评级，以及4)实际信息来源与首选信息来源的对比。数据分析来自2005年卫生信息全国趋势调查(HINTS)的管理。HINTS是一项横断面随机数字拨号电话调查，加权后提供一般人口的估计。近一半的美国人(48.7%)表示，他们从一个或另一个来源寻找过癌症信息。接触过癌症的人的比例最高(63.1%的癌症幸存者和54.6%的有家族病史的人)，而没有癌症病史的人最低(27.6%的人没有癌症病史)。对于那些回忆起最后一次观看的人来说，质量问题位居寻求信息体验的榜首。在确诊后多年的追踪中，寻找信息的模式显示出首选来源和实际来源之间的差异。寻求信息在癌症幸存者中很普遍，而且不会随着时间的推移而减少。给出了重新设计信息环境以改善幸存者的长期结果的处方。
Survivors' information-seeking behavior has traditionally been documented through analysis of inquiries to hotlines and cancer information services. Data from these self-selected inquiries tend to be restricted to a time around diagnosis, and to those populations possessing the wherewithal and motivation to seek information actively. The current study used data from a general population survey to assess 1) the prevalence of information-seeking behavior among survivors in the general population, 2) characteristics of seekers versus non-seekers, 3) ratings of information-seeking experience, and 4) actual versus preferred sources of information. Data were analyzed from the 2005 administration of the Health Information National Trends Survey (HINTS). HINTS is a cross-sectional, random digit dial telephone survey, weighted to provide estimates for the general population. Nearly half of all Americans (48.7%) indicated that they have looked for cancer information from 1 source or another. Percentages were highest for those who have been touched by cancer (63.1% of cancer survivors and 54.6% of those with family histories) and lowest for those with no cancer history (27.6% of those with no history). Quality concerns topped the list of information-seeking experiences for those recalling the last time they looked. Patterns of information-seeking revealed a discrepancy between preferred and actual source when tracked over years since diagnosis. Information-seeking is prevalent among cancer survivors and does not diminish over time. Prescriptions are given for reengineering the information environment to improve long-term outcomes for survivors.