Factors associated with the quality of life of family caregivers for leukemia patients in China.
Factors associated with the quality of life of family caregivers for leukemia patients in China.
复制标题
中国白血病患者家庭照顾者生活质量的相关因素
DOI：
10.1186/s12955-017-0628-6
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发表时间：
2017-03-23
影响因子：
3.6
通讯作者：
Wu Q
中科院分区：
文献类型：
--
作者：
Yu H;Li L;Liu C;Huang W;Zhou J;Fu W;Ma Y;Li S;Chang Y;Liu G;Wu Q
背景白血病不仅影响患者的生活质量，而且还影响其家庭照顾者的生活质量。目前对白血病患者FCS生活质量的研究较少。方法采用横断面问卷调查方法，对黑龙江省3所医院309名白血病患者进行问卷调查。采用WHOQOL-BREF中文版对受试者的生活质量进行评估。结果FCS在4个领域的生活质量得分均较低：生理领域12.7 ± 2.8，心理领域12.2 ± 2.5，社会领域13.2 ± 2.9，环境领域11.3 ± 2.5。社会支持是FCS生活质量的主要预测因子，四个领域的标准化β系数为0.41~0.58，其次是家庭功能(心理、社会和环境领域的β = 为0.37 ~ 0.44)。年龄较大、受教育程度高、无宗教信仰、情绪困扰程度较高、照顾年龄较小的功能障碍患者的生活质量较低。结论本研究对了解白血病患者的功能障碍生活质量具有重要意义。白血病患者FCS的生活质量低，对FCS的支持程度低是FCS低生活质量的主要预测因素。
BackgroundThe leukemia affects not only the quality of life (QOL) of patients with the disease but also that of their family caregivers (FCs). The research studies on QOL of FCs for leukemia patients are limited. This study aimed to evaluate the QOL of FCs for leukemia patients in Heilongjiang province, China.MethodsA cross-sectional questionnaire survey was undertaken with 309 FCs for leukemia patients recruited from three hospitals in Heilongjiang province. The QOL of the participants was assessed using the Chinese version of WHOQOL-BREF. Multivariate regression models were established to determine the predictors of the QOL of FCs, including the socio-economic characteristics of patients and FCs, and the emotional distress, social support and family functions of FCs.ResultsThe FCs had low QOL scores in all four domains: 12.7 ± 2.8 for physical, 12.2 ± 2.5 for psychological, 13.2 ± 2.9 for social and 11.3 ± 2.5 for environment. Social support is a major predictor of the QOL of FCs, with a standardized β coefficient of “high support” ranging from 0.41 to 0.58 for the four domains, followed by family function (β = 0.37 ~ 0.44 for psychological, social and environmental domains). The FCs who were older, highly educated, had no religious belief, suffered from a higher level of emotional distress, and provided care to younger patients and the patients without insurance coverage had lower QOL than the others.ConclusionThe study provides some important insights into the QOL of FCs for leukemia patients. The QOL of FCs for leukemia patients is low and low levels of support to FCs are a major predictor of low QOL of FCs.