A Theoretically Grounded Exploration of Individual and Family Self-Management of Polycystic Ovary Syndrome in Adolescents.
A Theoretically Grounded Exploration of Individual and Family Self-Management of Polycystic Ovary Syndrome in Adolescents.
复制标题
青少年多囊卵巢综合征个人和家庭自我管理的理论探索。
DOI：
10.1080/24694193.2019.1679278
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发表时间：
2020
期刊：
影响因子：
--
通讯作者：
Rew,Lynn
中科院分区：
文献类型：
--
作者：
Young,CaraC;Sagna,AtamiO;Monge,Maria;Rew,Lynn
多囊卵巢综合征（PCOS）是一种非常普遍的疾病，越来越多的人在青春期被诊断出来。本研究探讨了多囊卵巢综合征青少年及其父母自我管理的背景和过程。PCOS青少年（n = 7）和他们的父母（n = 8）参加了一系列的焦点小组。演绎主题分析的指导下，个人和家庭的自我管理理论（IFSMT），和模式，确定与其中所描述的背景和过程。一个次要的归纳方法被用来作为一个新的上下文模式出现：心理健康和福祉。研究结果表明，青少年及其家人希望进行最佳的自我管理，特别有效的策略可以考虑采取整体的家庭干预方法，除了行为改变之外，还可以解决心理健康和福祉问题。研究结果首次反映了PCOS青少年及其家庭的独特需求。
Polycystic ovary syndrome (PCOS) is highly prevalent and increasingly diagnosed during adolescence. This study explored the context and processes of self-management among adolescents, and parents of adolescents, who have PCOS. Adolescents with PCOS (n = 7) and their parents (n = 8) participated in a series of focus groups. Deductive thematic analysis was guided by the Individual and Family Self-Management Theory (IFSMT), and the patterns that were identified aligned with the contexts and processes described therein. A secondary inductive approach was employed as a novel contextual pattern emerged: psychological health and well-being. Study findings suggest that adolescents and their families have a desire to engage in optimal self-management, and particularly effective strategies may consider a holistic, family intervention approach that addresses psychological health and well-being in addition to behavior change. Study findings are the first to reflect the unique needs of adolescents with PCOS and their families.