Rethinking the relationship between science and society: Has there been a shift in attitudes to Patient and Public Involvement and Public Engagement in Science in the United Kingdom?
Rethinking the relationship between science and society: Has there been a shift in attitudes to Patient and Public Involvement and Public Engagement in Science in the United Kingdom?
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DOI：
10.1111/hex.12295
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发表时间：
2016-06
期刊：
影响因子：
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通讯作者：
McKevitt C
中科院分区：
文献类型：
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作者：
Boaz A;Biri D;McKevitt C
让公众和患者参与研究的政策必要性可以被视为研究环境更广泛转变的一部分。这项研究解决了这样一个问题：是否有一个转变的态度，病人和公众参与（PPI）和公众参与科学（PES）之间的研究人员？通过对19名研究人员的深入访谈，探讨了NIHR支持的三个生物医学研究中心对PPI和PES的态度。与会者区分了PPI（作为一项让患者和护理人员参与研究项目和方案的活动）和PES（作为一项旨在向公众传播研究成果，让公众参与更广泛的科学政策问题或促进更好地理解科学在社会中的作用的活动）。虽然参与者对这些做法表现出一系列态度，但他们都抵制与公众和患者分享权力和控制研究过程。虽然研究人员准备与公众和患者接触，并列出了接触的好处，但研究显示，他们对社会在科学中的作用（以及科学在社会中的作用）的基本态度与以前的研究报告中的态度几乎没有差异。对参与者来说，科学仍然是科学家的专利，病人和公众被邀请去“修修补补”。
The policy imperative to engage the public and patients in research can be seen as part of a wider shift in the research environment. This study addresses the question: Has there been a shift in attitudes to Patient and Public Involvement (PPI) and Public Engagement in Science (PES) amongst researchers? Attitudes to PPI and PES within a cluster of three NIHR supported Biomedical Research Centres were explored through in‐depth interviews with 19 researchers. Participants distinguished PPI (as an activity involving patients and carers in research projects and programmes) from PES (as an activity that aims to communicate research findings to the public, engage the public with broader issues of science policy or promote a greater understanding of the role of science in society). While participants demonstrated a range of attitudes to these practices, they shared a resistance to sharing power and control of the research process with the public and patients. While researchers were prepared to engage with the public and patients and listed the advantages of engagement, the study revealed few differences in their underlying attitudes towards the role of society in science (and science in society) to those reported in previous studies. To the participants science remains the preserve of scientists, with patients and the public invited to ‘tinker at the edges’.