HIV PREVENTION RESEARCH ETHICS: AN INTRODUCTION TO THE SPECIAL ISSUE
HIV PREVENTION RESEARCH ETHICS: AN INTRODUCTION TO THE SPECIAL ISSUE
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DOI：
10.1525/jer.2014.9.1.1
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发表时间：
2014-02-01
影响因子：
1.3
通讯作者：
Fisher, Celia B.
中科院分区：
文献类型：
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作者：
Fisher, Celia B.
本期《人类研究伦理实证研究杂志》特刊收录了由nida资助的福特汉姆大学艾滋病预防研究伦理研究所培育的项目样本。前三篇文章采用了共同学习的过程，讲述了在美国、印度和菲律宾参与艾滋病预防研究的从药物滥用中康复的个体和从事性工作的个体的经历。第四篇文章介绍了一种独特的以社区为基础的方法来开发研究伦理培训模块，其目的是增加美洲印第安人和阿拉斯加土著部落成员作为合作伙伴参与关于健康差异的研究。最后两篇文章集中了一个关键的学术视角，探讨了IRB对艾滋病毒研究审查的两个未被充分研究的领域：使用社交媒体网站招募艾滋病毒预防研究人员的新兴和不断变化的伦理挑战，以及处理参与者的研究相关投诉，包括感知到的研究危害或不符合他们最初期望的研究经历。本期特刊的文章共同确定了关键的伦理十字路口，并为尊重价值和值得研究参与者信任的最佳实践提供了建议。
THIS SPECIAL ISSUE OF THE JOURNAL of Empirical Research on Human Research Ethics represents a sampling of projects fostered through the NIDA-funded Fordham University HIV Prevention Research Ethics Institute. The first three articles employ processes of co-learning to give voice to the experiences of individuals recovering from substance abuse and engaged in sex work who have participated in HIV prevention studies in the United States, India, and the Philippines. The fourth article describes a unique community-based approach to the development of research ethics training modules designed to increase participation of American Indian and Alaskan Native (AI/AN) tribal members as partners in research on health disparities. The last two articles focus a critical scholarly lens on two underexamined areas confronting IRB review of HIV research: The emerging and continuously changing ethical challenges of using social media sites for recruitment into HIV prevention research, and the handling of research-related complaints from participants involving perceived research harms or research experiences that do not accord with their initial expectations. Together, the articles in this special issue identify key ethical crossroads and provide suggestions for best practices that respect the values and merit the trust of research participants.