A new scale to measure family members' perception of community health care services for persons with Huntington disease.
A new scale to measure family members' perception of community health care services for persons with Huntington disease.
复制标题
衡量家庭成员对亨廷顿病患者社区卫生保健服务看法的新量表。
DOI：
10.1111/j.1365-2753.2009.01144.x
复制
发表时间：
2010
影响因子：
2.4
通讯作者：
Reed,DavidA
中科院分区：
文献类型：
--
作者：
Sousa,ValmiD;Williams,JanetK;Barnette,JackJ;Reed,DavidA
基本原理、目的和目标亨廷顿病 (HD) 是一种进行性遗传性脑部疾病，会导致破坏性认知、行为和身体损伤。患有这种疾病的人及其护理人员需要适当且易于获得的医疗保健服务，以帮助他们充分控制疾病。本研究的目的是评估新量表的心理测量特性，该量表测量 HD 患者家庭成员对社区卫生保健服务 (CHCS) 的看法。方法采用方法设计来检查 245 名 HD 诊断患者家庭成员的 CHCS 量表的初始可靠性和维度。数据分析包括计算Cronbach's α系数、计算α的95%置信区间以及进行项目分析和探索性因素分析。结果基于Cronbach's α的量表的信度为0.83。使用主成分分析和最大方差旋转的因子分析表明，该量表存在三个可解释的因素。因子1，HD知识，α = 0.82，特征值为4.67，解释了33.42%的方差；因子2，HD社区资源，α = 0.62，特征值为1.68，解释了12.02%的方差；因子 3，个体化 HD 管理，α = 0.77，特征值为 1.45，解释了 10.39% 的方差。结论 本研究的结果提供了 CHCS 量表的结构有效性和内部一致性信度的证据。有必要对亨廷顿舞蹈症患者家庭照顾者的其他样本进行进一步的心理测量测试。
Rationale, aims, and objectivesHuntington disease (HD) is a progressive genetic brain disease leading to disruptive cognitive, behavioural and physical impairments. Persons with the condition and their caregivers need appropriate and accessible health care services to help them manage the disease adequately. The purpose of this study was to evaluate the psychometric properties of a new scale that measures family members' perception of community health care services (CHCS) for persons with HD.MethodsA methodological design was used to examine the initial reliability and dimensionality of the CHCS scale among 245 family members of persons with a diagnosis of HD. Data analysis consisted of computing Cronbach's α coefficients, calculating the 95% confidence interval for α and performing item‐analysis and exploratory factor analysis.ResultsReliability of the scale based on Cronbach's α was 0.83. Factor analysis using principal component analysis and varimax rotation suggested that three interpretable factors underlie the scale. Factor 1, HD knowledge, had α = 0.82, eigenvalue of 4.67 and explained 33.42% of the variance; factor 2, HD community resources, had α = 0.62, eigenvalue of 1.68 and explained 12.02% of the variance; factor 3, individualized HD management, had α = 0.77, eigenvalue of 1.45 and explained 10.39% of the variance.ConclusionsFindings from this study provide evidence of both construct validity and internal consistency reliability of the CHCS scale. Further psychometric testing of the scale in other samples of family caregivers of persons with HD is warranted.