Genetic screening raises questions for employers and insurers.
Genetic screening raises questions for employers and insurers.
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基因筛查给雇主和保险公司带来了问题。
DOI：
10.1126/science.2938255
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发表时间：
1986
期刊：
影响因子：
56.9
通讯作者：
G. Kolata
中科院分区：
文献类型：
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作者：
G. Kolata
检测对将在以后的生活中或在某些环境条件下发展的遗传疾病的易感性的测试的前景引发了许多伦理问题。其中包括这些测试的实验性质，应该向个人提供的年龄，以及向患者，雇主和保险公司披露测试结果的影响。目前，对亨廷顿氏病标志物的研究最先进，马萨诸塞州总医院和约翰霍普金斯大学医院很快将成为第一个提供这种疾病筛查的机构。尽管约翰霍普金斯计划将这些结果视为机密研究数据，但许多研究人员承认，未来将很难向第三方保留这些信息。Kolata警告说，在广泛的基因检测成为现实之前，现在是制定数据处理政策的时候了。
The prospect of tests to detect susceptibility to genetic diseases that will develop later in life or under certain environmental conditions raises many ethical concerns. Among these are the experimental nature of these tests, the age at which they should be offered to individuals, and the repercussions of disclosing test results to patients, employers, and insurance companies. At present, research is most advanced on the marker for Huntington's disease, and Massachusetts General Hospital and Johns Hopkins University Hospital soon will become the first institutions to offer screening for this disorder. Although Johns Hopkins plans to treat the results as confidential research data, many investigators acknowledge that it will be difficult in the future to keep the information from third parties. Kolata warns that now is the time to develop policies for handling data, before widespread genetic testing becomes a reality.