Lifestyle issues for colorectal cancer survivors-perceived needs, beliefs and opportunities
Lifestyle issues for colorectal cancer survivors-perceived needs, beliefs and opportunities
复制标题
DOI：
10.1007/s00520-012-1487-7
复制
发表时间：
2013-01-01
影响因子：
3.1
通讯作者：
Coyle, Joanne
中科院分区：
文献类型：
--
作者：
Anderson, Annie S.;Steele, Robert;Coyle, Joanne
随着结直肠癌（CRC）患者生存率的提高，考虑短期和长期的自我管理需求是很重要的。目前的工作旨在探索患者对饮食、活动和生活方式对减少疾病复发的作用的看法的需求。40名年龄在27岁至84岁之间的结直肠癌幸存者参加了英国社区的六个焦点小组。研究结果表明，结直肠癌幸存者将欢迎在治疗后立即提供饮食指导，以减轻症状和对食物选择的恐惧。许多参与者积极寻求生活方式方面的建议，但却经历了困惑、混杂的信息、文化上不恰当的指导以及益处证据的不确定性。人们对饮食和体育活动作为癌症诱因的作用持怀疑态度，部分原因是人们认为他们的生活方式一直是健康的，看不到恢复健康的行为如何能降低未来的疾病风险。改变生活方式以“增加对他们有利的几率”（防止复发）似乎是比预防本身更有意义的概念。那些做出或维持饮食改变的人强调了这些对健康和生活控制感的重要性。改变生活方式的教条式做法可能导致对受害者的指责和污名化。个性化的、有证据的、关于生活方式选择的指导似乎确实是护理计划中非常需要的一部分，应该纳入幸存者计划。
As survival rates for patients treated with colorectal cancer (CRC) increase, it is important to consider the short- and long-term self-management needs. The current work aimed to explore perceived patient needs for advice on diet, activity and beliefs about the role of lifestyle for reducing disease recurrence.Forty colorectal cancer survivors, aged between 27 and 84, participated in six focus groups in community locations in the UK.The findings suggest that CRC survivors would welcome guidance on diet in the immediate posttreatment period to alleviate symptoms and fears about food choices. Many participants actively sought lifestyle advice but experienced confusion, mixed messages, culturally inappropriate guidance and uncertainty about evidence of benefit. There was scepticism over the role of diet and physical activity as causes of cancer, in part because people believed their lifestyles had been healthy and could not see how reinstating healthy behaviours would reduce future disease risk. The sense of changing lifestyle to 'stack the odds in their favour' (against recurrence) appeared a more meaningful concept than prevention per se. Those people who had made or maintained dietary changes highlighted the importance of these to contributing to wellbeing and a sense of control in their life.A dogmatic approach to lifestyle change may lead to perceptions of victim blaming and stigmatisation. Personalised, evidence informed, guidance on lifestyle choices does appear to be a much needed part of care planning and should be built in to survivorship programmes.