Genetic dilemmas and the child's right to an open future

Genetic dilemmas and the child's right to an open future
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DOI:
10.2307/3527620
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发表时间:
1997-03-01
影响因子:
3.3
通讯作者:
Davis, DS
Davis, DS
中科院分区:
人文科学3区
文献类型:
--
作者:
Davis, DS

文献摘要

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虽然深深致力于非指导性咨询的模式,大多数遗传咨询师进入这个行业的健康和残疾的某些假设,例如,它是一个听力正常的人比一个聋人更好。因此,当有某些残疾的父母要求帮助他们生一个有同样残疾的孩子时,大多数遗传咨询师都深感不安。将这一伦理挑战视为善行与自主之间的冲突,好处不大。最好将这一挑战重新定义为父母自主权与儿童未来自主权之间的冲突。
Although deeply committed to the model of nondirective counseling, most genetic counselors enter the profession with certain assumptions about health and disability-for example, that it is preferable to be a hearing person than a deaf person. thus, most genetic counselors are deeply troubled when parents with certain disabilities ask for assistance in having a child who shares their disability. This ethical challenge benefits little from viewing it as a conflict between beneficence and autonomy. The challenge is better recast as a conflict between parental autonomy and the child's future autonomy.