Unmet needs of caregivers of individuals referred to a dementia care program.
Unmet needs of caregivers of individuals referred to a dementia care program.
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DOI：
10.1111/jgs.13251
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发表时间：
2015-02
影响因子：
6.3
通讯作者：
Wenger NS
中科院分区：
文献类型：
--
作者：
Jennings LA;Reuben DB;Evertson LC;Serrano KS;Ercoli L;Grill J;Chodosh J;Tan Z;Wenger NS
照顾者在处理痴呆相关问题时的压力和低自我效能感在照顾痴呆患者中很常见，但未满足需求的水平及其与提供者类型的关系尚未得到很好的表征。城市学术医疗中心对社区居住的老年痴呆症护理人员进行了调查，并完成了关于他们自己的患者健康问卷（PHQ-9）、修改的护理人员压力指数、测量患者症状严重程度和相关护理人员痛苦的神经精神病学问卷，以及为研究开发的9项护理人员自我效能量表。在一年中对307名患者和护理人员的调查中，32%的护理人员表示对管理痴呆症相关问题有信心，19%的人知道如何获得社区服务来帮助提供护理，28%的人同意患者的提供者帮助他们解决痴呆症护理问题。38%的人报告了高水平的照顾压力，15%的人报告了中度到重度的抑郁症状。与内科医生、家庭医生或其他专家相比，老年医生推荐的患者的护理人员更常报告有医疗保健专业人员帮助解决痴呆症护理问题，但自我效能感没有差异。低照顾者自我效能感与较高的照顾者压力、更多的照顾者抑郁症状以及照顾行为症状更严重的患者相关。大多数护理人员认为，在处理痴呆症相关问题时，患者的提供者提供的支持不足，报告紧张，并且对管理护理的信心较低。需要新的护理模式来满足痴呆症患者及其护理人员的复杂护理需求。
Caregiver strain and low self-efficacy for managing dementia-related problems are common among those caring for patients with dementia, but the level of unmet need and relation to provider type has not been well characterized. Cross-sectional observational cohort Urban academic medical center Caregivers of community-dwelling adults with dementia referred to the program Caregivers were surveyed and completed the Patient Health Questionnaire (PHQ-9) about themselves, the Modified Caregiver Strain Index, the Neuropsychiatric Inventory Questionnaire, which measures patient symptom severity and related caregiver distress, and a 9-item caregiver self-efficacy scale developed for the study. Of 307 patient and caregiver dyads surveyed over a one year period, 32% of caregivers reported confidence in managing dementia-related problems, 19% knew how to access community services to help provide care, and 28% agreed the patient’s provider helped them work through dementia care problems. Thirty-eight percent reported high levels of caregiver strain, and 15% reported moderate to severe depressive symptoms. Caregivers of patients referred by geriatricians more often reported having a healthcare professional to help work through dementia care problems than those referred by internists, family physicians, or other specialists, but self-efficacy did not differ. Low caregiver self-efficacy was associated with higher caregiver strain, more caregiver depressive symptoms, and caring for a patient with more severe behavioral symptoms. Most caregivers perceived inadequate support from the patient’s provider in managing dementia-related problems, reported strain, and had low confidence in managing caregiving. New models of care are needed to address the complex care needs of patients with dementia and their caregivers.
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影响因子：
5.7
作者：
Marwit, SJ;Meuser, TM
通讯作者：
Meuser, TM
影响因子：
6.3
作者：
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影响因子：
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作者：
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通讯作者：
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影响因子：
3.4
作者：
Fortinsky, RH;Kercher, K;Burant, CJ
通讯作者：
Burant, CJ
影响因子：
3
作者：
Gaugler, Joseph E.;Yu, Fang;Wyman, Jean F.
通讯作者：
Wyman, Jean F.