Improving newborn screening laboratory test ordering and result reporting using health information exchange

Improving newborn screening laboratory test ordering and result reporting using health information exchange
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DOI:
10.1197/jamia.m3295
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发表时间:
2010-01-01
影响因子:
6.4
通讯作者:
Downing, Gregory
Downing, Gregory
中科院分区:
管理学2区
文献类型:
--
作者:
Downs, Stephen M.;van Dyck, Peter C.;Downing, Gregory

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新生儿筛查 (NBS) 信息的采集、编码和交流对公共卫生实验室、卫生部门、医院和门诊护理实践构成了挑战。越来越多的筛查条件和解释的复杂性导致对综合信息管理策略的需求不断增长。这使得 NBS 成为个人患者护理和人口健康活动融合中电子健康信息交换 (HIE) 工具和架构的重要测试。为此,美国健康信息界承担了本文所述的三项任务。首先,建立了新生儿筛查用例,以促进指导 HIE 的通用术语和互操作性规范的标准协调。其次,开发了新生儿筛查编码和术语以整合到电子 HIE 活动中。最后,澄清了管理信息交换的隐私、安全和临床实验室监管要求,作为建立改善筛查计划的及时性、有效性和优质患者护理服务效率的途径的框架。
Capture, coding and communication of newborn screening (NBS) information represent a challenge for public health laboratories, health departments, hospitals, and ambulatory care practices. An increasing number of conditions targeted for screening and the complexity of interpretation contribute to a growing need for integrated information-management strategies. This makes NBS an important test of tools and architecture for electronic health information exchange (HIE) in this convergence of individual patient care and population health activities. For this reason, the American Health Information Community undertook three tasks described in this paper. First, a newborn screening use case was established to facilitate standards harmonization for common terminology and interoperability specifications guiding HIE. Second, newborn screening coding and terminology were developed for integration into electronic HIE activities. Finally, clarification of privacy, security, and clinical laboratory regulatory requirements governing information exchange was provided, serving as a framework to establish pathways for improving screening program timeliness, effectiveness, and efficiency of quality patient care services.