Assessing mass media reporting of disease-related genetic discoveries - Development of an instrument and initial findings

Assessing mass media reporting of disease-related genetic discoveries - Development of an instrument and initial findings
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DOI:
10.1177/1075547003024004003
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发表时间:
2003-06-01
影响因子:
9
通讯作者:
Holtzman, NA
Holtzman, NA
中科院分区:
人文科学2区
文献类型:
--
作者:
Mountcastle-Shah, E;Tambor, E;Holtzman, NA

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目的:开发一种工具,以评估内容和平衡的媒体报道有关人类疾病的遗传发现,并评估其检测variability.Methods的能力:消费者焦点小组,以帮助开发的工具,和调查的科学家和记者评估的项目。由至少两名读者的评分评估可靠性。通过比较两个发现的47个故事的得分来测量变异性:读者对内容项的一致性是好的(Kappa = 0.74)。消费者、科学家和记者对于应该包括哪些内容项目达成了实质性的一致。一些被记者认为必不可少的项目出现在很少的故事中。三分之一的故事夸大了这一发现的好处,三分之一的故事提出了专家意见的平衡选择。具体项目的覆盖范围从11.5%到84.6%.Conclusions:该仪器是可靠的,包含消费者,科学家和记者认为重要的项目,并检测变异性。
Objective: To develop an instrument to assess the content and balance of media stories about genetic discoveries relevant to human diseases and assess its ability to detect variability.Methods: Consumer focus groups to help develop the instrument, and surveys of scientists and journalists to evaluate the items. Ratings by at least two readers assessed reliability. Variability was measured by comparing scores of 47 stories emanating from two discoveries.Results: Reader agreement on content items was good (kappa = 0.74). Consumers, scientists, and journalists were in substantial agreement about what content items should be included. Some items deemed essential by journalists appeared in very few stories. One-third of stories exaggerated the benefits of the discovery and one-third presented a balanced selection of expert opinion. Coverage of specific items varied from 11.5 percent to 84.6 percent.Conclusions: The instrument is reliable; contains items deemed important by consumers, scientists, and journalists; and detects variability.