Policy, service pathways and mortality: a 10-year longitudinal study of people with profound intellectual and multiple disabilities
Policy, service pathways and mortality: a 10-year longitudinal study of people with profound intellectual and multiple disabilities
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DOI：
10.1111/j.1365-2788.2006.00884.x
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发表时间：
2007-05-01
影响因子：
3.6
通讯作者：
Lambe, L.
中科院分区：
文献类型：
--
作者：
Hogg, J.;Juhlberg, K.;Lambe, L.
背景142名儿童和成人的深度智力和多种残疾，确定在1993年在一个单一的苏格兰地区，通过邮寄问卷调查收集的详细信息。跨越的时间代表了一个时期的重大政策变化，在社区照顾和包容性的policywere implemented.Results的原始人口的142，30（21.1%）已经死亡，在干预期间，两个已经离开了该地区，允许后续信息收集110个人。根据政策，1993年住在医院和招待所的所有人到2003年都已搬迁到社区，但很大一部分人已搬进其他形式的集体护理机构，特别是疗养院。总体而言，集体护理的比例从1993年的38%增加到2003年的43%。第二个主要提供者是家庭照顾者，住在家里的比例也从33%增加到40%。集团房屋拨备由6.3%上升至15.5%。日间服务仍以传统的中心模式提供。死亡的主要原因是呼吸道疾病。幸存者在2003年在1993年更有能力在个人自助和运动能力，不太可能有epileps.Conclusions的调查结果被认为是在何种程度上，他们实现政策的愿望。
Background One hundred and forty-two children and adults with profound intellectual and multiple disabilities were identified in 1993 in a single Scottish region on whom detailed information was collected via a postal questionnaire survey.Methods They were followed up in 2003. The time spanned represented a period of significant policy change in which community care and inclusive policies were implemented.Results Of the original population of 142, 30 (21.1%) had died in the intervening period and two had left the area, allowing follow-up information to be collected on 110 individuals. While in line with policy, all those living in hospital and hostels in 1993 had been relocated by 2003 to community settings, a substantial proportion had moved into other forms of congregate care, notably nursing homes. Overall, the proportion in congregate care increased from 38% in 1993 to 43% in 2003. The second principal providers were family carers, with the proportion of those living at home also increasing from 33% to 40%. Provision in group houses increased from 6.3% to 15.5%. Day service provision remained based on a traditional centre-based model. The principal cause of death was respiratory disease. Survivors in 2003 were in 1993 more competent in personal self-help and motor abilities and were less likely to have epilepsy.Conclusions The findings are considered with respect to the extent to which they realize policy aspirations.