Family member perspectives of deceased relatives' end-of-life options on admission to a palliative care unit in Japan
Family member perspectives of deceased relatives' end-of-life options on admission to a palliative care unit in Japan
复制标题
家人对已故亲属入住日本姑息治疗病房的临终选择的看法
DOI：
10.1007/s00520-012-1405-z
复制
发表时间：
2012
影响因子：
3.1
通讯作者：
Shima Y
中科院分区：
文献类型：
--
作者：
Sato K;Miyashita M;Morita T;Tsuneto S;Shima Y
目的我们的目标是更好地促进临终病人的愿望，死在一个最喜欢的地方，这可能并不总是这样的病人承认姑息治疗单位。我们的目的是评估家属的观点（1）可用的和首选的地方照顾时，他们生病的亲人被接纳到姑息治疗单位和（2）为什么病人喜欢住在家里，但不能。MethodsA问卷回答了407 663癌症患者的家属谁被接纳到95姑息治疗单位在日本。百分之三的受访者回答说，姑息治疗单位是唯一的选择。缺乏其他护理场所的患者更喜欢他们的家（49%），医院（26%）或长期护理机构（28%）。只有9%的受访者回顾性地认为住在家里是可行的，原因如下：担心患者身体状况恶化（85%），与医院相比，家中护理不足（84%），即将住院（63%），和病人的担心是负担（60%）。3%的晚期癌症患者被送进姑息治疗病房，没有其他治疗选择。改善姑息治疗单位的门诊治疗和在病人家中建立姑息治疗系统将大大有利于病人及其家属。
PurposeOur goal was to better facilitate the desire of terminally ill patients to die in a favorite place, which may not always be the case for patients admitted to palliative care units. Our aims were to assess the perspectives of bereaved family members about (1) available and preferred places of care when their ill loved one was admitted to a palliative care unit and (2) why patients preferred to live at home but could not.MethodsA questionnaire was answered by 407 of 663 bereaved family members of cancer patients who were admitted to 95 inpatient palliative care units in Japan.ResultsSeventy-three percent of respondents answered that a palliative care unit was the only available option. Patients lacking other places for care preferred their home (49%), a hospital (26%), or a long-term care facility (28%). Only 9% retrospectively considered that living at home was feasible for the following reasons: anxiety about the patient’s deteriorating physical condition (85%), insufficient care at home compared to a hospital (84%), imminent hospitalization (63%), and the patient’s concern about being burdensome (60%).ConclusionSeventy-three percent of terminally ill cancer patients admitted to palliative care units had no other options for care. Improving outpatient treatment at palliative care units and establishing a palliative care system in patients’ homes would greatly benefit patients and their families.