Do psychiatrists understand research-related experiences, attitudes, and motivations of schizophrenia study participants?
Do psychiatrists understand research-related experiences, attitudes, and motivations of schizophrenia study participants?
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DOI：
10.1016/s0010-440x(03)00042-7
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发表时间：
2003-05-01
影响因子：
7.3
通讯作者：
Nguyen, K
中科院分区：
文献类型：
--
作者：
Warner, TD;Roberts, LW;Nguyen, K
精神科医生以不同但重要的身份为研究参与者服务。因为当参与者误解临床研究者的动机和责任时，研究中可能会出现伦理问题（即，“治疗误解”），重要的是，研究参与者和精神病护理人员和调查人员之间的关系是基于真正的相互理解。关于精神科医生与精神分裂症研究参与者的协调的考虑从未被实证研究过。作为一个更大的结构化访谈调查研究的一部分，我们评估了精神科医生对精神分裂症研究志愿者自我报告的经历，态度和动机的预测。确定了14对患者-精神科医生可纳入其中。精神科医生预测精神分裂症研究参与者的参与容易，隐私问题和参与未来研究的意愿，但低估了他们积极的整体体验。精神科医生也与精神分裂症参与者对个人利益的态度和动机相协调，但不能准确预测他们对帮助他人和科学的反应。此外，精神科医生低估了精神分裂症参与者在招募过程中对研究人员和照顾者的影响程度。精神科医生认识到精神分裂症参与者的负担、主要关注点、未来参与意愿和个人利益取向，但他们似乎并不完全了解自愿参与研究的精神分裂症患者的研究经验、利他取向和关系取向的总体积极质量。(C)2003年爱思唯尔公司All rights reserved.
Psychiatrists serve in different but important capacities with research participants. Because ethical problems may arise in research when participants misunderstand motives and responsibilities of clinical-investigators (i.e., "therapeutic misconception"), it is important that relationships between research participants and psychiatric caregivers and investigators be based on genuine mutual understanding. Considerations about attunement of psychiatrists with schizophrenia research participants have never been studied empirically. As part of a larger structured interview-survey study, we assessed the predictions of psychiatrists regarding self-reported experiences, attitudes, and motivations of individual schizophrenia research volunteers who were known to the respondent psychiatrists. Fourteen patient-psychiatrist pairs were identified for inclusion. Psychiatrists predicted schizophrenia research participants' ease of participation, privacy concerns, and willingness to participate in future research but underestimated their positive overall experience. Psychiatrists also were attuned to schizophrenia participants' attitudes and motivations regarding personal benefit but did not accurately predict their responses concerning helping others and science. Also, psychiatrists underestimated the schizophrenia participants' perceived degree of influence by researchers and caregivers during recruitment. Psychiatrists recognized the burden, primary concerns, future participation willingness, and personal benefit orientation of schizophrenia participants, but they did not appear to fully understand the overall positive quality of research experience, altruistic orientation, and relationship orientation of their schizophrenia patients who volunteer for research participation. (C) 2003 Elsevier Inc. All rights reserved.