Palliative care research - priorities and the way forward
Palliative care research - priorities and the way forward
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DOI：
10.1016/j.ejca.2008.02.036
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发表时间：
2008-05-01
影响因子：
8.4
通讯作者：
Radbruch, Lukas
中科院分区：
文献类型：
--
作者：
Kaasa, Stein;Radbruch, Lukas
姑息治疗主要是在学术机构之外开发的，主要侧重于服务开发。1996年，欧洲姑息治疗协会（EAPC）通过建立EAPC研究网络，到目前为止，大多数癌症姑息治疗研究都是小规模和描述性的，没有必要的质量来提供基于证据的输入研究人群的描述和定义在不同的研究之间是不同的，并且在如何测量最重要的结果上没有共识，例如姑息治疗研究中的疼痛，疲劳和抑郁等症状。在过去的十年中，一些国家建立了大型研究小组，部分基于国家和国际赠款。为了改善国内和国际上的姑息治疗研究，需要给予这几个具有足够规模和足够产出的小组责任和激励，以在国内和国际上进行合作研究。有必要在姑息治疗研究中培养足够数量的临床科学家，并使这些科学家有可能获得永久研究职位，特别是临床和研究职位在研究训练期之后。国家和国际供资需要继续，成功的合作需要得到可预测的、可持续的供资。由于大多数姑息治疗患者来自肿瘤学，因此在这两个学科之间建立密切合作非常重要。(c)2008爱思唯尔有限公司保留所有权利。
Palliative care is developed primarily outside academic institutions and with a primary focus upon service development. Initiatives to formalise the research structure were taken in Europe in 1996 by the European Association for Palliative Care (EAPC) through the establishment of the EAPC research network, and in 1998 in United Kingdom through the establishment of a palliative care research society.Most studies conducted in cancer palliative care up to now have been small and descriptive without the necessary quality to give input into evidence based medicine.The study population is described and defined differently between studies and there is no consensus on how to measure the most important outcomes, such as symptoms including pain, fatigue and depression in palliative care research.During the last decade, large research groups have been established in some countries partly based upon national and international grants. In order to improve palliative care research nationally and internationally, these few groups of sufficient size and of sufficient output need to be given the responsibility and incentives to perform collaborative research nationally and internationally It is necessary to train a sufficient number of clinician scientists within palliative care research and to give these scientists the possibility of permanent research posts in particular combined clinical and research posts after the research training period. National and international funding needs to continue and successful collaboratives need to receive predictable, sustainable funding. Since the majority of palliative care patients come from oncology, it is important to establish a close collaboration between these two disciplines. (c) 2008 Elsevier Ltd. All rights reserved.