Development of a Culturally Competent Service to Improve Academic Functioning for Latino Survivors of Acute Lymphoblastic Leukemia: Methodological Considerations
Development of a Culturally Competent Service to Improve Academic Functioning for Latino Survivors of Acute Lymphoblastic Leukemia: Methodological Considerations
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DOI：
10.1177/1043454216676837
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发表时间：
2017-05-01
影响因子：
1.7
通讯作者：
Ruccione, Kathleen
中科院分区：
文献类型：
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作者：
Bava, Laura;Johns, Alexis;Ruccione, Kathleen
许多儿童急性淋巴细胞白血病（ALL）的幸存者会出现神经认知缺陷，损害学术功能，特别是在存在社会人口危险因素的情况下。这些风险因素在拉丁裔ALL幸存者中共存的程度尚未得到很好的描述，但随着美国人口结构的变化和ALL患者存活率的提高，需要有文化能力的干预措施。“癌症后实现最佳认知成功”服务是由一个代表护理、医学、心理学和社会工作的团队设计和实施的。服务内容包括针对治疗相关风险的神经认知评估和个性化干预，以及改善学龄ALL幸存者的学业成就。干预措施以儿童为中心，以家长为导向，认识到家长是学校系统内儿童支持和倡导者的主要来源。这项服务的设计是为了在文化上适合我们中心主要的拉丁裔患者群体，基于(1)儿童和父母的语言能力；(2)城市、低社会经济地位和流动人口的多元文化和生态考虑；(3)识字障碍；(4)语境因素。本报告描述了与设计和实施类似的拉丁裔儿童癌症幸存者文化主管服务相关的方法学考虑和实践影响。
Many survivors of childhood acute lymphoblastic leukemia (ALL) develop neurocognitive deficits that compromise academic functioning, especially in the presence of sociodemographic risk factors. The extent to which these risk factors coexist for Latino ALL survivors is not well described, but with shifts in U.S. demographics and improved survival in ALL, culturally competent interventions are needed. The Achieving Best Cognitive Successes after Cancer service was designed and implemented by a team representing nursing, medicine, psychology, and social work. Service components include neurocognitve assessment and individualized intervention for treatment-related risks and improving academic success for school-aged ALL survivors. Interventions are child-focused and parent-directed, recognizing that parents are major sources of support and advocates for their children within school systems. The service was designed to be culturally appropriate for the predominantly Latino patient population at our center, based on (1) linguistic competency of children and parents; (2) multicultural and ecological considerations for urban, low socioeconomic status, and migrant populations; (3) literacy barriers; and (4) contextual factors. This report describes methodological considerations and practice implications relevant to the design and implementation of similar culturally competent services for Latino pediatric cancer survivors.