Exploring and developing consumer health vocabularies
Exploring and developing consumer health vocabularies
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DOI：
10.1197/jamia.m1761
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发表时间：
2006-01-01
影响因子：
6.4
通讯作者：
Tse, T
中科院分区：
文献类型：
--
作者：
Zeng, QT;Tse, T
外行人（“消费者”）往往难以找到，理解，并采取行动的健康信息，由于其领域知识的差距。理想情况下，消费者健康词汇表（CHVs）将反映消费者表达和思考健康主题的不同方式，有助于弥合这一词汇差距。然而，尽管最近对消费者和专业语言之间的不匹配进行了研究（例如，词汇、语义和解释），很少有系统的努力来开发和评估CHV。本文提出的观点，CHV的发展是实际的和必要的扩展研究的信息为基础的工具，以促进消费者健康信息的寻求，检索和理解。为了支持这一观点，我们简要描述了一个分布式的，自下而上的方法（1）探索常见的消费者健康表达和专业概念之间的关系，（2）开发一个开放获取，初步（草案）“第一代”CHV。虽然认识到这种办法的局限性（例如，不涉及心理社会和文化因素），我们建议，这种探索性的研究和开发将产生对消费者健康表达的性质的见解，并协助开发人员创建工具和应用程序，以支持消费者健康信息的寻求。
Laypersons ("consumers") often have difficulty finding, understanding, and acting on health information due to gaps in their domain knowledge. Ideally, consumer health vocabularies (CHVs) would reflect the different ways consumers express and think about health topics, helping to bridge this vocabulary gap. However, despite the recent research on mismatches between consumer and professional language (e.g., lexical, semantic, and explanatory), there have been few systematic efforts to develop and evaluate CHVs. This paper presents the point of view that CHV development is practical and necessary for extending research on informatics-based tools to facilitate consumer health information seeking, retrieval, and understanding. In support of the view, we briefly describe a distributed, bottom-up approach for (1) exploring the relationship between common consumer health expressions and professional concepts and (2) developing an open-access, preliminary (draft) "first-generation" CHV. While recognizing the limitations of the approach (e.g., not addressing psychosocial and cultural factors), we suggest that such exploratory research and development will yield insights into the nature of consumer health expressions and assist developers in creating tools and applications to support consumer health information seeking.