Conceptual Framework to Guide Intervention Research Across the Trajectory of Dementia Caregiving
Conceptual Framework to Guide Intervention Research Across the Trajectory of Dementia Caregiving
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DOI：
10.1093/geront/gnz157
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发表时间：
2020-03-01
期刊：
影响因子：
5.7
通讯作者：
Cothran, Fawn
中科院分区：
文献类型：
--
作者：
Gallagher-Thompson, Dolores;Bilbrey, Ann Choryan;Cothran, Fawn
本文提出了一个全面的概念框架，旨在促进对照顾者和痴呆症患者在疾病发展过程中不断变化的需求进行研究。它建立在该领域以前的理论模型和干预文献的基础上，同时解决了显著的差距，包括对文化问题的关注不足；缺乏纵向研究；侧重于主要照顾者，几乎将痴呆症患者和其他家庭成员排除在外；结果衡量标准有限；以及对保健系统文化如何影响照顾者的生活质量缺乏关注。该框架强调护理、社会文化因素、卫生保健系统的因素以及痴呆症护理需求随着时间的变化而变化的交叉性。它提供了一个模板，以鼓励对照顾者和受照者之间的对等关系进行纵向研究，因为双方之一的身体和/或精神健康状况的重大变化可能会影响伴侣的身体和/或心理健康。这篇文章提供了使用这个框架的说明性研究项目，并以行动呼吁和邀请研究人员测试组件，分享反馈，并参与持续改进，以更快地在痴呆症护理的轨道上推进基于证据的知识和实践。
This article presents a comprehensive conceptual framework designed to foster research in the changing needs of caregivers and persons with dementia as they move through their illness trajectory. It builds on prior theoretical models and intervention literature in the field, while at the same time addressing notable gaps including inadequate attention to cultural issues; lack of longitudinal research; focus on primary caregivers, almost to the exclusion of the person with dementia and other family members; limited outcome measures; and lack of attention to how the culture of health care systems affects caregivers' quality of life. The framework emphasizes the intersectionality of caregiving, sociocultural factors, health care systems' factors, and dementia care needs as they change across time. It provides a template to encourage longitudinal research on reciprocal relationships between caregiver and care recipient because significant changes in the physical and/or mental health status of one member of the dyad will probably affect the physical and/or mental health of the partner. This article offers illustrative research projects employing this framework and concludes with a call to action and invitation to researchers to test components, share feedback, and participate in continued refinement to more quickly advance evidence-based knowledge and practice in the trajectory of dementia caregiving.