Information sharing across generations and environments (InfoSAGE): study design and methodology protocol.

Information sharing across generations and environments (InfoSAGE): study design and methodology protocol.
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DOI:
10.1186/s12911-018-0697-4
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发表时间:
2018-11-20
影响因子:
3.5
通讯作者:
Safran C
Safran C
中科院分区:
医学3区
文献类型:
--
作者:
Quintana Y;Crotty B;Fahy D;Lipsitz L;Davis RB;Safran C

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长寿为医疗保健提供者和家庭护理人员创造了越来越多的护理需求。越来越多的护理负担福尔斯在一个主要照顾者身上,增加了压力,减少了健康成果。此外,很少有关于75岁以上的成年人在利用在线平台与家庭成员分享健康信息方面的偏好的出版物。本研究旨在评估一种新颖的,基于互联网的,以家庭为中心的沟通和协作平台,以解决信息需求的老年人和他们的非正式照顾者在社区设置。本研究是一项基于互联网的开放性前瞻性队列研究,招募了一名75岁以上的成年人与一名非正式照顾者的二人组。Dyads将被提供使用InfoSAGE在线平台,而无需预期分配。参与者将同意使用在线流程,该流程允许从任何位置参与并共享重要的研究和隐私详细信息。该平台将能够捕获搜索查询并跟踪任务和讨论等功能。每六个月进行一次调查,在两年期间使用经验证的工具评估健康状况、健康和社会需求以及照顾者负担。我们将使用混合方法,利用定性调查数据沿着网站使用分析数据。对纵向使用和调查数据的分析将有助于研究随着中心老年人年龄的增长,家庭沟通和健康信息寻求的模式。我们将使用研究数据为与复杂的混合用户相关的设计建议提供信息,并特别考虑老年用户的需求和潜在的身体限制。
Longevity creates increasing care needs for healthcare providers and family caregivers. Increasingly, the burden of care falls to one primary caregiver, increasing stress and reducing health outcomes. Additionally, little has been published on adults’, over the age of 75, preferences in the development of health information sharing with family members using online platforms. This study aims to assess a novel, Internet based, family-centric communication and collaboration platform created to address the information needs of elders and their informal caregivers in a community setting. This study is an internet-based, open prospective cohort study, enrolling dyad pairs of one adult over the age of 75 with one informal caregiver. Dyads will be offered to use the InfoSAGE online platform without prospective assignment. Participants will consent using an online process that enables participation from any location and shares important study and privacy details. The platform will enable the capture of search queries and tracking of functions such as tasks and discussions. Surveys every six months assess health status, health and social needs, and caregiver burden using validated instruments over a two-year period. We will use a mixed methods approach, utilizing qualitative survey data along with website usage analytic data. Analysis of the longitudinal usage and survey data will help to examine the patterns of family communication and health information seeking as the central older adult ages. We will use the study data to inform design recommendations relevant to a complex mixture of users, with special consideration to the needs of older adult users and potential physical limitations.
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