Support/services among family caregivers of persons with dementia-perceived importance and services received

Support/services among family caregivers of persons with dementia-perceived importance and services received
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DOI:
10.1002/gps.2328
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发表时间:
2010-03-01
影响因子:
4
通讯作者:
Krevers, Barbro
Krevers, Barbro
中科院分区:
医学2区
文献类型:
--
作者:
Alwin, Jenny;Oberg, Birgitta;Krevers, Barbro

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目标:本研究的目的是探讨什么样的痴呆症患者的家庭照顾者认为是重要类型的支持/服务的关系经历的负面影响(NI),由于照顾者的情况,并调查照顾者是否收到的支持/服务视为important.Method:这项研究是基于瑞典的EUROFAMCARE项目的一部分,包括110照顾者的痴呆症患者。数据主要通过结构化电话访谈收集。照顾者被分为两组,一个较高的NI组和一个较低的NI组,根据NI规模从科普index.Results:获取信息和有人交谈被认为是非常重要的类型的支持/服务的照顾者在这两组中的比例最高。数据显示只有一个显着的差异,较高比例的照顾者在较高的NI组报告说,能够参加活动以外的照顾是非常重要的。还有一个迹象表明,较高比例的照顾者在较低的NI组认为有关疾病的信息非常重要。支持/服务被认为是重要的照顾者都收到了高和低degree.Conclusion:从这项研究的结果表明,有照顾者经历较高和较低的NI组之间几乎没有什么区别,他们的看法是什么重要类型的支持/服务。照顾者将信息、救济和咨询领域的不同类型的支助/服务评为非常重要。版权所有(C)2009约翰威利父子有限公司
Objective: The aim of this study was to examine what family caregivers of persons with dementia perceive as important types of support/services in relation to experienced negative impact (NI) due to the caregiver situation, and to investigate if caregivers receive the support/services perceived as important.Method: The study was based on the Swedish part of the EUROFAMCARE project and included 110 caregivers of persons with dementia. Data were collected primarily through structured telephone interviews. The caregivers were divided into two groups, a higher NI group and a lower NI group, based on the NI scale from the COPE index.Results: Getting information and having someone to talk to were perceived as very important types of support/services by the highest proportion of caregivers in both groups. Data indicated only one significant difference; a higher proportion of caregivers in the higher NI group reported being able to participate in activities outside of caring as very important. There was also an indication that a higher proportion of caregivers in the lower NI group perceived information about the disease as very important. Support/services perceived as important by the caregivers were received both to a high and a low degree.Conclusion: The results from this study suggest that there is almost no difference between groups of caregivers experiencing higher and lower NI regarding their perception of what are important types of support/services. The caregivers rated different types of support/services within the areas of information, relief and counselling as very important. Copyright (C) 2009 John Wiley & Sons, Ltd.