Telegenetics in Maine: Successful clinical and educational service delivery model developed from a 3-year pilot project
Telegenetics in Maine: Successful clinical and educational service delivery model developed from a 3-year pilot project
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DOI：
10.1097/01.gim.0000151150.20570.e7
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发表时间：
2005-01-01
影响因子：
8.8
通讯作者：
Smith, R
中科院分区：
文献类型：
--
作者：
Lea, DH;Johnson, JL;Smith, R
目的：这个为期 3 年的试点项目的目标是提高缅因州获得遗传学教育和临床服务的机会。方法：缅因州南部遗传学服务机构、血液研究基金会与缅因州远程医疗服务机构合作，建立了远程医疗能力，与位于缅因州北部、中部和南部的农村医疗保健中心以及全州公共卫生护理中心建立联系，以提供遗传学临床和教育服务。核心合作伙伴包括农村家庭实践住院医师计划。缅因州北部的农村儿科诊所和全州的公共卫生护士。创建的远程遗传学模型基于预防和医疗管理技术解决方案的开发和实施。进行试点研究以收集数据，并向保险公司寻求报销。评估包括对通过远程医疗提供的遗传学服务的质量、可接受性和有用性进行调查。电话采访。和决策信心评估。结果：项目期间，24个农村临床点参与。总共进行了 93 次演示，并对 125 名患者进行了评估。接受评估的患者中有 64% 是儿科患者。尽管现场协调员努力完成满意度调查。提供者和患者的反应水平较低（分别为 18% 和 25%）。在收到的评价中。提供者和患者对远程遗传学的反应是积极的。遗传学和神经病学顾问的决策信心很高。我们的经验有助于开发可在其他农村州使用的远程遗传学模型。
Purpose: The goal of this 3-year pilot project was to increase accessibility to genetics educational and clinical services in Maine. Methods: Southern Maine Genetics Services, Foundation for Blood Research in collaboration with Maine Telemedicine Services established telemedicine capacity to link with rural health care centers located in Northern, Central, and Southern Maine and public health nursing statewide for the provision of genetics clinical and educational services. Core partners included a rural family practice residency program. a rural pediatric practice in northern Maine, and public health nurses statewide. The telegenetics model created was based on development and implementation of a preventive and medical management technology solution. conducting a pilot study to collect data, and approaching insurance companies for reimbursement. Evaluation included surveys on the quality, acceptability, and usefulness of genetics services delivered via telemedicine. telephone interviews. and decision-making confidence evaluations. Results: During the project period, 24 rural clinical sites participated. In total, 93 presentations were given, and 125 patients were evaluated. Sixty-four percent of patients evaluated were pediatric. Despite site coordinator efforts to complete satisfaction surveys. the provider and patient response level was low (18% and 25%, respectively). Of those evaluations received. provider and patient response to telegenetics was positive. Decision-making confidence for genetics and neurology consultants was high. Our experience contributes to the development of telegenetics models that can be used in other rural states.