Internet informs parents about growth hormone.

Internet informs parents about growth hormone.
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DOI:
10.1159/000351463
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发表时间:
2013
影响因子:
3.2
通讯作者:
Grimberg A
Grimberg A
中科院分区:
医学3区
文献类型:
--
作者:
Cousounis P;Lipman TH;Ginsburg KR;Grimberg A

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父母的知识影响他们的孩子的医疗保健的决定。9-14岁的儿科初级保健患者的父母,无论身高如何,都参加了开放式焦点小组(OFG)。主持人问,“人们如何发现生长激素(GH)?”由于许多父母引用了互联网,谷歌搜索的前10名结果,生长激素儿童和服用生长激素儿童的父母,被视为具有代表性。三名研究者独立进行内容分析,然后达成共识。通过汇总统计量对结果进行制表。对18个网站进行了审查,其中大多数网站的目的是教育(56%),许多网站的资金来自商业来源(44%)。生长激素治疗信息各不相同,33%的网站只包含有关美国食品和药物管理局批准的适应症的内容。五十六%的网站包括有关治疗的社会心理益处的信息,44%的网站承认这些信息是有争议的。虽然对OFG参与者来说很重要,但39%的网站都忽略了风险和成本。父母经常从互联网上为子女寻找与生长激素有关的信息,尽管其内容可能不完整和/或带有偏见。临床医生可能希望为父母提供批判性评估基于互联网的信息的工具,预先审查的网站列表或他们自己的教育材料。
Parent knowledge influences decisions regarding medical care for their children. Parents of pediatric primary care patients aged 9-14 years, irrespective of height, participated in open focus groups (OFG). Moderators asked, “How do people find out about growth hormone (GH)?” Because many parents cited the Internet, the top 10 results from the Google searches, growth hormone children and parents of children who take growth hormone, were examined as representative. Three investigators independently performed content analysis, then reached consensus. Results were tabulated via summary statistics. Eighteen websites were reviewed, most with the purpose of education (56%) and many funded by commercial sources (44%). GH treatment information varied, with 33% of sites containing content only about U.S Food and Drug Administration-approved indications. Fifty-six percent of sites included information about psychosocial benefits from treatment, 44% acknowledging them as controversial. Although important to OFG participants, risks and costs were each omitted from 39% of websites. Parents often turn to the Internet for GH-related information for their children, though its content may be incomplete and/or biased. Clinicians may want to provide parents with tools for critically evaluating Internet-based information, a list of pre-reviewed websites, or their own educational materials.
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期刊: CYBERPSYCHOLOGY & BEHAVIOR
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