Cross-cultural differences in health-related quality of life of people with epilepsy: Findings from a European study
Cross-cultural differences in health-related quality of life of people with epilepsy: Findings from a European study
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DOI：
10.1023/a:1008916326411
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发表时间：
1999-12-01
影响因子：
3.5
通讯作者：
Steen, N
中科院分区：
文献类型：
--
作者：
Buck, D;Jacoby, A;Steen, N
目的：研究大量欧洲国家癫痫成人健康相关生活质量（HRQOL）的国家间差异。研究方法：自我完成邮寄问卷发送到大样本的成年癫痫患者，从癫痫支持团体或癫痫门诊招募。调查表以英文编制并翻译。检查每种语言的回译准确性。该问卷寻求有关临床和社会人口统计学详细信息的信息，并包含一些先前验证的心理社会健康量表（SF-36、癫痫感知影响量表和耻辱感量表）。结果如下：控制社会人口统计学和临床特征，显着的国家间差异被发现在癫痫量表的感知影响的分数，在SF-36的8个领域中的7个，和耻辱感量表。在西班牙和荷兰的受访者表现一贯更好，而那些在法国表现最差，与其他国家相比，在使用的各种HRQOL措施。结论：HRQOL的跨文化差异的几个可能的原因提出。很明显，这不是一个单一的解释，也可能有我们忽略的原因。这项研究强调需要进一步的综合研究，以便在社会背景下更彻底地了解癫痫患者在不同国家的地位。
Purpose: To examine between-country differences in health-related quality of life (HRQOL) of adults with epilepsy across a large number of European countries. Methods: Self-completion postal questionnaire sent to large sample of adults with epilepsy, recruited from epilepsy support groups or epilepsy outpatient clinics. The questionnaire was developed in English and translated. Back-translations from each language were checked for accuracy. The questionnaire sought information on clinical and socio-demographic details, and contained a number of previously validated scales of psychosocial well-being (the SF-36, the perceived impact of epilepsy scale, and a feelings of stigma scale). Results: Controlling for socio-demographic and clinical characteristics, significant between-country differences were found in scores on the perceived impact of epilepsy scale, on seven of the eight SF-36 domains, and on the feelings of stigma scale. Respondents in Spain and the Netherlands fared consistently better, whilst those in France fared poorest, compared to those in other countries in terms of the various HRQOL measures used. Conclusion: Several possible reasons for the cross-cultural differences in HRQOL are proposed. Clearly, there is no single explanation and there may also be reasons which we have overlooked. This study emphasises the need for further comprehensive research in order that the position of people with epilepsy in different countries be more thoroughly understood in the social context.