Number of surgeries performed during the lifetime of patients with myelomeningocele.
Number of surgeries performed during the lifetime of patients with myelomeningocele.
复制标题
脊髓脊膜膨出患者一生中进行的手术次数。
DOI：
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复制
发表时间：
2022
期刊：
影响因子：
--
通讯作者：
A. Asai
中科院分区：
文献类型：
--
作者：
M. Nonaka;Haruna Isozaki;Yumiko Komori;T. Kamei;J. Takeda;Yuichiro Nonaka;I. Yabe;M. Zaitsu;Kenji Nakashima;A. Asai
目的
脊髓脊膜膨出患者通常需要多次手术，但没有研究阐明这些患者一生中的治疗方式。作者分析了日本脊髓脊膜膨出患者的手术类型和年龄。
方法
日本医疗数据中心有限公司提供的2005年1月至2020年3月期间556名脊髓脊膜膨出患者的日本健康索赔数据，有限公司、调查了每个专科的手术数量和手术时的患者年龄。将患者分为两组（≤ 18岁[A组]和> 18岁[B组]），并检查两组之间手术类型和手术百分比的变化方式。
结果
平均随访时间为4.4年。总体随访结束时的平均年龄为18.6岁（范围0-70.5岁），在此期间，294例患者进行了1033次手术（每例患者每年进行0.42次手术）。A组患者的手术次数为192例患者中的818例，每例患者每年0.62例手术，B组患者的手术次数为102例患者中的215例，每例患者每年0.19例手术。手术数量和手术时的平均年龄如下：313例神经外科手术，5.16岁; 280例骨科手术，11.36岁; 70例泌尿外科手术，14.57岁; 202例皮肤/整形外科手术，16.19岁。在与脊髓脊膜膨出相关的手术中，B组的CSF分流管放置、脊髓栓系松解、肌肉和肌腱手术以及其他骨关节手术的比率显著降低，但他们继续进行这些手术。B组皮肤手术、肾造瘘、输尿管造瘘、膀胱造瘘率明显高于对照组。
结论
与脊髓脊膜膨出相关的多个专业的大量手术在成年后继续进行，这表明这些患者一生都需要持续的护理。
OBJECTIVE
Patients with myelomeningocele often require multiple surgeries, but no study has clarified the kind of treatment given to these patients throughout their lives. The authors analyzed the type of surgery that was performed and at what age for Japanese patients with myelomeningoceles.
METHODS
The Japanese health claims data of 556 patients with myelomeningocele for the period from January 2005 to March 2020 provided by the Japan Medical Data Center Co., Ltd., were examined to investigate the number of surgeries performed and the patient age at surgery for each specialty. The patients were divided into two groups (those ≤ 18 years old [group A] and those > 18 years old [group B]), and the way in which the types of surgery and the percentage of surgeries changed between these two groups was examined.
RESULTS
The mean follow-up period was 4.4 years. The mean age at the end of the overall follow-up was 18.6 years (range 0-70.5 years), and 1033 surgeries were performed on 294 patients (0.42 surgeries performed per patient per year) during this period. The number of surgeries for patients in group A was 818 in 192 patients, with 0.62 surgeries per patient per year, and for patients in group B it was 215 in 102 patients, with 0.19 surgeries per patient per year. The number of surgeries and the mean age at the time of surgery were as follows: 313 neurosurgeries, 5.16 years; 280 orthopedic surgeries, 11.36 years; 70 urological surgeries, 14.57 years; and 202 dermatological/plastic surgeries, 16.19 years. In the surgeries related to myelomeningocele, the rates of CSF shunt placement, tethered cord release, muscle and tendon surgery, and other bone and joint surgery decreased significantly in group B, but they continued to undergo these surgeries. In group B, the rates of skin surgery, nephrostomy, ureterostomy, and cystostomy were significantly higher.
CONCLUSIONS
A significant number of surgeries in multiple specialties related to myelomeningocele continue to be performed in adulthood, indicating that these patients require continuous care throughout their lives.
影响因子：
1.9
作者：
Kelly,MaryellenS;Thibadeau,Judy;Struwe,Sara;Ramen,Lisa;Ouyang,Lijing;Routh,Jonathan
通讯作者：
Routh,Jonathan
影响因子：
4.1
作者：
Dupepe EB;Hopson B;Johnston JM;Rozzelle CJ;Jerry Oakes W;Blount JP;Rocque BG
通讯作者：
Rocque BG